Member of the Expert Advisory Group on Data Access convened by the Wellcome Trust, Economic and Social Research Council, Medical Research Council and Cancer Research UK
The Expert Advisory Group on Data Access (EAGDA) was established in 2012 by the Wellcome Trust, Cancer Research UK, the Economic and Social Research Council, and the Medical Research Council to provide strategic advice to these funders on the emerging scientific, legal and ethical issues associated with data access for human genetics research and cohort studies.
The group provides support to current and future studies and, where relevant, their Data Access Committees (DACs), across the fields of genetics, epidemiology and the social sciences – identifying best practice and encouraging harmonisation in governance and decision-making. It also seeks to enhance the UK’s input into international policy discussions on data access.
Period
2013 → 2016
Held at
Expert Advisory Group on Data Access, United Kingdom