Description
I workshop with participants with dementia and their carers from the DETERMIND cohort study. Participants were asked to think about, discuss and feed back their experiences of the data collection visit (when researchers come to collect DETERMIND data). They worked on tables with a facilitator, and each table was given anonymous quotes from other participants (collected for a linked PhD study) and encouraged to think why someone taking part in the study might have said this and what we can learn to make the experience of being a participant as positive as possible.| Period | 28 Jul 2023 |
|---|---|
| Event title | DETERMIND participant conference |
| Event type | Conference |
| Location | Brighton, United KingdomShow on map |
Keywords
- Dementia
- PPI
- Research
- Research methods
- Involvement
- Data collection
- Carers
- Workshop
Documents & Links
- Final PhD slides for participant conference 28th July 2023
File: application/octet-stream, 2.93 MB
Type: Text
Related content
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Publications
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Standardised data collection from people with dementia over the telephone: A qualitative study of the experience of DETERMIND programme researchers in a pandemic
Research output: Contribution to journal › Article › peer-review
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How do quantitative studies involving people with dementia report experiences of standardised data collection? A narrative synthesis of NIHR published studies
Research output: Contribution to journal › Article › peer-review
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Projects
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Standardised measures for people living with dementia: experiences, observations and implications
Project: Research project (funded) › Studentship (departmental)
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DETERMIND: DETERMinants of quality of life, care and costs, and consequences of INequalities in people with Dementia and their family carers
Project: Research project (funded) › Research