Debra Howell

Search results

• 2024

  Information preferences of patients with chronic blood cancer: a qualitative investigation

  Howell, D. A., McCaughan, D., Smith, A., Patmore, R. & Roman, E., 20 Aug 2024, In: PLOS ONE. 19, 8, 14 p., e0293772.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Lymphoid blood cancers, incidence and survival 2005-2023: A report from the UK's Haematological Malignancy Research Network

  Lamb, M., Painter, D., Howell, D., Barrans, S., Cargo, C., de Tute, R., Tooze, R., Burton, C., Patmore, R., Roman, E. & Smith, A., 1 Feb 2024, In: Cancer Epidemiology. 88, 11 p., 102513.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Pathways of patients with chronic haematological malignancies: a report from the UK’s population-based HMRN

  Roman, E., Howell, D., Smith, A., Crouch, S., Bagguley, T. C., Painter-Blase, D. E., Sheridan, R., McCaughan, D. M., Painter-Blase, J., Curson, W., Wang, H.-I., Manca, A., Bennett, A., Gc, V. S., Miller, C., Atkin, K. M., Thomson, R., Hanratty, B., Burton, C. & Ashcroft, J. & 1 others, Patmore, R., 11 Jul 2024, In: Programme Grants for Applied Research. 12, 5, 136 p., 3045553.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Qualitative Insights into the Factors Impacting Information Sharing in People with Chronic Haematological Malignancies

  Howell, D., McCaughan, D. M., Sheridan, R., Patmore, R. & Roman, E., 13 Feb 2024, In: European Journal of Cancer Care. 2024, 9 p., 9999977.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• ‘It’s not meant to be for life, but it carries on’: a qualitative investigation into the psychosocial needs of young retinoblastoma survivors

  O'Donnell, N., Phillips, B., Morgan, J. & Howell, D., 30 Apr 2024, In: BMJ Open. 14, 4, 12 p., e082779.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• 2023

  An Economic Model to Establish the Costs Associated With Routes to Presentation for Patients With Multiple Myeloma in the United Kingdom

  Porteous, A., Gibson, S., Eddowes, L., Drayson, M. T., Pratt, G., Bowcock, S., Willis, F., Parkin, H., Renwick, S., Laketic-Ljubojevic, I., Howell, D., Smith, A. & Stern, S., May 2023, In: Value in Health Regional Issues. 35, p. 27-33 7 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Chronic myeloid leukaemia: A qualitative interview study exploring disease impact from patient and practitioner perspectives

  Hewison, A., Roman, E., Smith, A., McCaughan, D. M., Sheridan, R., Patmore, R., Atkin, K. M. & Howell, D., 1 Dec 2023, In: European journal of oncology nursing. 67, 8 p., 102421.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Chronic Myeloid Leukaemia: A Qualitative Study of Patient and Practitioner Experiences of Managing Treatment

  Hewison, A., Roman, E., Smith, A., McCaughan, D. M., Sheridan, R., Patmore, R., Atkin, K. M. & Howell, D., 25 Nov 2023, In: European Journal of Cancer Care. 2023, 12 p., 6646271.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Cohort profile: the United Kingdom Childhood Cancer Study (UKCCS) – a UK- wide population- based study examining the health of cancer survivors: the United Kingdom Childhood Cancer Study (UKCCS) - a UK-wide population-based study examining the health of cancer survivors

  Roman, E., Kane, E. V., Smith, A., Howell, D., Sheridan, R., Simpson, J., Bonaventure, A. & Kinsey, S., 17 Nov 2023, In: BMJ Open. 13, 11, 9 p., e073712.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Experiences and preferences for psychosocial support: a qualitative study exploring the views of patients with chronic haematological cancers

  Sheridan, R., McCaughan, D. M., Hewison, A., Roman, E., Smith, A., Patmore, R. & Howell, D., 18 Aug 2023, In: BMJ Open. 13, 8, 10 p., e070467.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Patient perspectives of ‘Watch and Wait’ for chronic haematological cancers: Findings from a qualitative study

  McCaughan, D., Roman, E., Sheridan, R., Hewison, A., Smith, A. G., Patmore, R. & Howell, D. A., Aug 2023, In: European journal of oncology nursing. 65, 9 p., 102349.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• 2022

  Cohort Profile Update: The Haematological Malignancy Research Network (HMRN)’s UK population-based cohorts

  Roman, E., Kane, E., Howell, D., Lamb, M., Bagguley, T., Crouch, S., Painter, D., Patmore, R. & Smith, A., 4 Feb 2022, (E-pub ahead of print) In: International Journal of Epidemiology. 8 p., dyab275.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Excess morbidity and mortality among survivors of childhood acute lymphoblastic leukaemia: 25 years of follow-up from the United Kingdom Childhood Cancer Study (UKCCS) population-based matched cohort

  Kane, E., Kinsey, S. E., Bonaventure, A., Johnston, T., Simpson, J., Howell, D., Smith, A. & Roman, E., 7 Mar 2022, In: BMJ Open. 12, 3, e056216.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Incurable but treatable: Understanding, uncertainty and impact in chronic blood cancers-A qualitative study from the UK's Haematological Malignancy Research Network

  Howell, D. A., McCaughan, D., Smith, A. G., Patmore, R. & Roman, E., 10 Feb 2022, In: PLOS one. 17, 2, 16 p., e0263672.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Treatment decision making (TDM): a qualitative study exploring the perspectives of patients with chronic haematological cancers

  McCaughan, D., Roman, E., Smith, A., Patmore, R. & Howell, D., 29 Mar 2022, In: BMJ Open. 12, 3, p. e050816 13 p., e050816.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• 2021

  Health impact of monoclonal gammopathy of undetermined significance (MGUS) and monoclonal B-cell lymphocytosis (MBL): findings from a UK population-based cohort

  Lamb, M. J., Smith, A., Painter, D., Kane, E., Bagguley, T., Newton, R., Howell, D., Cook, G., de Tute, R., Rawstron, A., Patmore, R. & Roman, E., 22 Feb 2021, In: BMJ Open. 11, 2, 10 p., e041296.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Preferred and actual place of death in haematological malignancies: a report from the UK haematological malignancy research network

  Sheridan, R., Roman, E., Smith, A. G., Turner, A., Garry, A. C., Patmore, R., Howard, M. & Howell, D., 18 Feb 2021, In: BMJ Supportive & Palliative Care. 11, p. 7-16 9 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• 2020

  Experiences of living with chronic myeloid leukaemia and adhering to tyrosine kinase inhibitors: A thematic synthesis of qualitative studies

  Hewison, A., Atkin, K. M., McCaughan, D. M., Roman, E., Smith, A. G., smith, G. & Howell, D., 11 Feb 2020, (E-pub ahead of print) In: European journal of oncology nursing. 45, 11 p., 101730.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• 'Unpacking' pathways to lymphoma and myeloma diagnosis: Do experiences align with the Model of Pathways to Treatment? Findings from a UK qualitative study with patients and relatives

  Howell, D., Hart, R., Smith, A., Macleod, U., Patmore, R. & Roman, E., 12 Feb 2020, In: BMJ Open. 10, 2, 10 p., e034244.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• 2019

  Disease-related factors affecting timely lymphoma diagnosis: a qualitative study exploring patient experiences

  Howell, D., Hart, R. I., Smith, A. G., Macleod, U., Patmore, R. & Roman, E., Feb 2019, In: The British journal of general practice : the journal of the Royal College of General Practitioners. 69, 679, p. e134-e145 11 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Haematology nurses' perspectives of their patients' places of care and death: A UK qualitative interview study

  McCaughan, D. M., Roman, E., Smith, A. G., Garry, A. C., Johnson, M., Patmore, R., Howard, M. & Howell, D., Apr 2019, In: European journal of oncology nursing. 39, p. 70-80 11 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Hodgkin lymphoma detection and survival: findings from the Haematological Malignancy Research Network

  Lamb, M., Roman, E., Howell, D., Kane, E. V., Bagguley, T. C., Burton, C., Patmore, R. & Smith, A. G., 11 Dec 2019, In: BJGP open. 3, 4, 10 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Perspectives of bereaved relatives of patients with haematological malignancies concerning preferred place of care and death: a qualitative study

  McCaughan, D. M., Roman, E., Smith, A. G., Garry, A. C., Johnson, M., Patmore, R., Howard, M. & Howell, D., 1 May 2019, In: Palliative Medicine. 33, 5, p. 518-530 13 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• 2018

  Change in Physiological Variables in the Last Two Weeks of Life: An Observational Study of Hospitalized Adults With Heart Failure

  Taylor, P., Crouch, S., Howell, D. A., Dowding, D. W. & Johnson, M. J., May 2018, In: Journal of pain and symptom management. 55, 5, p. 1335-1340 6 p.

  Research output: Contribution to journal › Article › peer-review

• Cohort Profile: The Haematological Malignancy Research Network (HMRN); a UK population-based patient cohort

  Smith, A., Howell, D., Crouch, S., Painter, D., Blase, J., Wang, H.-I., Hewison, A., Bagguley, T., Appleton, S., Kinsey, S., Burton, C., Patmore, R. & Roman, E., Jun 2018, In: International Journal of Epidemiology. 47, 3, p. 700-700g 8 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Determinants of hospital death in haematological cancers: findings from a qualitative study

  McCaughan, D. M., Roman, E., Smith, A. G., Gary, A., Johnson, M., Patmore, R., Howard, M. & Howell, D., 1 Mar 2018, In: BMJ Supportive & Palliative Care. 8, 1, p. 78-86 9 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Impact of novel therapies for mantle cell lymphoma in the real world setting: a report from the UK's Haematological Malignancy Research Network (HMRN)

  Smith, A., Roman, E., Appleton, S., Howell, D., Johnson, R., Burton, C. & Patmore, R., Apr 2018, In: British Journal of Haematology. 181, 2, p. 215-228 14 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Myeloma: Patient accounts of their pathways to diagnosis

  Howell, D. A., Hart, R. I., Smith, A. G., Macleod, U., Patmore, R., Cook, G. & Roman, E., 4 Apr 2018, In: PLoS ONE. 13, 4, p. e0194788 15 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Palliative care specialists' perceptions concerning referral of haematology patients to their services: findings from a qualitative study

  McCaughan, D., Roman, E., Smith, A. G., Garry, A. C., Johnson, M. J., Patmore, R. D., Howard, M. R. & Howell, D. A., 21 Feb 2018, In: BMC Palliative Care. 17, 1, p. 33 11 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• 2017

  Emergency admission and survival from aggressive non-Hodgkin lymphoma: A report from the UK's population-based Haematological Malignancy Research Network

  Kane, E. V., Howell, D., Smith, A., Crouch, S., Burton, C., Roman, E. & Patmore, R., 1 Jun 2017, In: European Journal of Cancer. 78, p. 53-60 8 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Multiple myeloma: routes to diagnosis, clinical characteristics and survival - findings from a UK population-based study

  Howell, D., Smith, A., Appleton, S., Bagguley, T., Macleod, U., Cook, G., Patmore, R. & Roman, E., 28 Mar 2017, In: British Journal of Haematology. 177, 1, p. 67-71 5 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Preferred and actual place of death in haematological malignancy

  Howell, D. A., Wang, H. I., Roman, E., Smith, A. G., Patmore, R., Johnson, M. J., Garry, A. & Howard, M., 1 Jun 2017, In: BMJ Supportive & Palliative Care. 7, p. 150-157 8 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• 2016

  Factors associated with hospital death in patients with haematological malignancies: findings from a UK poulation-based study

  Turner, A. K., Roman, E., Smith, A. & Howell, D., 1 Sept 2016, In: BMJ Supportive & Palliative Care. 6, 3, 30.

  Research output: Contribution to journal › Article › peer-review

  Open Access

• Key beliefs about reasons for hospital deaths in patients with blood cancers: Qualitative findings from a UK study

  McCaughan, D. & Howell, D., 1 Sept 2016, In: Journal of Epidemiology & Community Health. 70, Suppl 1, p. A22 OP32 .

  Research output: Contribution to journal › Article › peer-review

• Preferred and actual place of death in patients with blood cancers: Findings from a UK population-based study

  Howell, D., Turner, A., Smith, A. & Roman, E., 1 Sept 2016, In: J Epidemiol Community Health. 70, Suppl 1, p. A89 1 p., P80 .

  Research output: Contribution to journal › Article › peer-review

• Why do patients with haematological malignancies die in hospital? Qualitative findings from a UK study

  McCaughan, D., Roman, E., Smith, A. & Howell, D., 1 Sept 2016, In: BMJ Supportive & Palliative Care. 6, 3, 29.

  Research output: Contribution to journal › Article › peer-review
• 2015

  Caring for terminal patients in haematology: the urgent need of a new research agenda

  Niscola, P., Tendas, A., Giovannini, M., Scaramucci, L., Perrotti, A., de Fabritiis, P. & Howell, D. A., Jan 2015, In: Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer. 23, 1, p. 5-7 3 p.

  Research output: Contribution to journal › Article › peer-review

• Change in physiological variables in the last 2 weeks of life: An observational study of hospital in-patients with cancer

  Taylor, P., Crouch, S., Howell, D. A., Dowding, D. W. & Johnson, M. J., Feb 2015, In: Palliative Medicine. 29, 2, p. 120-127

  Research output: Contribution to journal › Article › peer-review

• Impact of age and socioeconomic status on treatment and survival from aggressive lymphoma: a UK population-based study of diffuse large B-cell lymphoma

  Smith, A., Crouch, S., Howell, D., Burton, C., Patmore, R. & Roman, E., Dec 2015, In: Cancer Epidemiology. 39, 6, p. 1103-1112 10 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

  File

• Lymphoma incidence, survival and prevalence 2004–2014: sub-type analyses from the UK’s Haematological Malignancy Research Network

  Smith, A. G., Crouch, S., Lax, S. J., Li, J., Painter, D. E., Howell, D., Patmore, R., Jack, A. & Roman, E., 28 Apr 2015, In: British journal of cancer. 112, p. 1575-1584 10 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

  File

• Risk factors and time to symptomatic presentation in leukaemia, lymphoma and myeloma

  Howell, D. A., Warburton, F., Ramirez, A.-J., Roman, E., Smith, A. G. & Forbes, L. J. L., 29 Sept 2015, In: British journal of cancer. 113, p. 1114-1120 6 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Variations in specialist palliative care referrals: findings from a population-based patient cohort of acute myeloid leukaemia, diffuse large B-cell lymphoma and myeloma

  Howell, D., Wang, H. I., Roman, E., Smith, A. G., Patmore, R., Johnson, M., Garry, A. & Howard, M. R., 2015, In: Palliative and Supportive Care. 5, 5, p. 496–502

  Research output: Contribution to journal › Article › peer-review

  File
• 2014

  Community palliative care clinical nurse specialists: a descriptive study of nurse-patient interactions

  Howell, D., Hardy, B., Boyd, C., Ward, C., Roman, E. & Johnson, M., 21 May 2014, In: International Journal of Palliative Nursing. 20, 5, p. 246-253 8 p.

  Research output: Contribution to journal › Article › peer-review

• Determinants of survival in patients with chronic myeloid leukaemia treated in the new era of oral therapy: findings from a UK population-based patient cohort

  Smith, A. G., Painter, D., Howell, D. A., Evans, P., Smith, G., Patmore, R., Jack, A. & Roman, E., 15 Jan 2014, In: BMJ Open. 4, 1, 7 p., e004266.

  Research output: Contribution to journal › Article › peer-review

• Long-term medical costs and life expectancy of acute myeloid leukemia: a probabilistic decision model

  Wang, H. I., Aas, E., Howell, D., Roman, E., Patmore, R., Jack, A. & Smith, A., 1 Mar 2014, In: Value in Health. 17, 2, p. 205-214 9 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• PATHWAYS FOR BLOOD AND BOWEL CANCER PATIENTS IN THE LAST YEAR OF LIFE: DESCRIBING INPATIENT CARE PATTERNS USING ROUTINE NATIONAL DATA

  Kane, E. V., Howell, D., Morris, E., Johnson, M. & Oliver, S. E., 1 Mar 2014, In: BMJ Supportive & Palliative Care. 4, 1, p. 116

  Research output: Contribution to journal › Article › peer-review

• Time to diagnosis and symptoms

  Howell, D., 2014, Lymphoma Matters, Winter.

  Research output: Contribution to specialist publication › Article

• 2013

  Place of death in haematological malignancy: variations by disease sub-type and time from diagnosis to death

  Howell, D. A., Wang, H. I., Smith, A. G., Howard, M. R., Patmore, R. D. & Roman, E., 19 Nov 2013, In: BMC Palliative Care. 12, 1, p. 42

  Research output: Contribution to journal › Article › peer-review

• Time-to-diagnosis and symptoms of myeloma, lymphomas and leukaemias: a report from the Haematological Malignancy Research Network

  Howell, D. A., Smith, A. G., Jack, A., Patmore, R., Macleod, U., Mironska, E. & Roman, E., 2013, In: BMC Hematology. 13, 9, p. 1-9

  Research output: Contribution to journal › Article › peer-review
• 2012

  Acute Myeloid Leukaemia Treatment Pathways: a Detailed Costing Study Example

  Wang, H. I., Godfrey, C., Parrott, S., Howell, D., Patmore, R., Roman, E., Jack, A. & Smith, A., 1 Nov 2012, In: Value in Health. 15, 7, p. A655 PCN14 .

  Research output: Contribution to journal › Article › peer-review