Lorna Katharine Fraser

Search results

• 2023

  Psychological well-being of hospice staff: systematic review

  Papworth, A., Ziegler, L., Beresford, B., Mukherjee, S., Fraser, L., Fisher, V., O'Neill, M., Golder, S., Bedendo, A. & Taylor, J., 25 Apr 2023, (E-pub ahead of print) In: BMJ Supportive & Palliative Care. 15 p., spcare-2022-004012.

  Research output: Contribution to journal › Article › peer-review

• Understanding parent experiences of end-of-life care for children: a systematic review and qualitative evidence synthesis

  Barrett, L. M. A., Fraser, L. K., Noyes, J., Taylor, J. & Hackett, J., Feb 2023, In: Palliative Medicine. 37, 2, 178 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

  File
• 2022

  1065 Consultant led Specialist paediatric palliative care team provision in the UK: the ENHANCE Study on end-of-life care for children

  Bedendo, A., Papworth, A. J., Hackett, J., Haynes, A., Weatherly, H. L. A., Hinde, S., Walker, G., Murtagh, F. E. M. & Fraser, L. K., 17 Aug 2022, In: Archives of Disease in Childhood. 107, A39.

  Research output: Contribution to journal › Article › peer-review

• Achieving child-centred care for children and young people with life-limiting and life-threatening conditions: a qualitative interview study

  Coombes, L., Braybrook, D., Roach, A., Scott, H., Hardardottir, D., Bristowe, K., Ellis-Smith, C., Bluebond-Langner, M., Fraser, L. K., Downing, J., Farsides, B., Murtagh, F. E. M. & Harding, R., 12 Aug 2022, (E-pub ahead of print) In: European journal of pediatrics. 14 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Adult healthcare is associated with more emergency healthcare for young people with life-limiting conditions

  Jarvis, S. W., Flemming, K., Richardson, G. & Fraser, L. K., 12 Feb 2022, (E-pub ahead of print) In: Pediatric Research.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• COVID-19: impact on pediatric palliative care

  Scott, H., Coombes, L., Braybrook, D., Roach, A., Hardardottir, D., Bristowe, K., Ellis-Smith, C., Higginson, I., Wei, G., Bluebond-Langner, M., Farsides, B., Murtagh, F. E. M., Fraser, L. K. & Harding, R., 1 Jul 2022, In: Journal of pain and symptom management. 64, 1, p. E1-E5 5 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Deaths in Children and Young People in England following SARS-CoV-2 infection during the first pandemic year

  Smith, C., Odd, D., Harwood, R., Ward, J., Linney, M., Clark, M., Hargreaves, D., Ladhani, S., Draper, E., Davis, P. J., Kenny, S. E., Whittaker, E., Luyt, K., Viner, R. & Fraser, L. K., Jan 2022, In: Nature Medicine. 28, p. 185–192

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• End of life care for infants, children and young people (ENHANCE): Protocol for a mixed methods evaluation of current practice in the United Kingdom

  Papworth, A., Hackett, J., Beresford, B., Murtagh, F., Weatherly, H., Hinde, S., Bedendo, A., Walker, G., Noyes, J., Oddie, S., Vasudevan, C., Feltbower, R., Phillips, B., Hain, R., Subramanian, G., Haynes, A. & Fraser, L. K., 13 May 2022, In: NIHR Open Research. 2, p. 37 14 p., 37.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Experiences of staff providing specialist palliative care during COVID-19: A multiple qualitative case study

  Bradshaw, A., Dunleavy, L., Garner, I., Preston, N., Bajwah, S., Cripps, R., Fraser, L. K., Maddocks, M., Hocaoglu, M., Murtagh, F. E. M., Oluyase, A. O., Sleeman, K., Higginson, I. & Walshe, C., 1 Jun 2022, In: Journal of the Royal Society of Medicine. 115, 6, p. 220-230 11 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Incidence of Anxiety and Depression in Children and Young People with Life-Limiting Conditions

  Barker, M., Beresford, B. A. & Fraser, L. K., 11 Nov 2022, (E-pub ahead of print) In: Pediatric Research. 10 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

  File

• Life.course digital T.wins – I.ntelligent M.onitoring for E.arly and continuous intervention and prevention (LifeTIME): Proposal for a proof-of-concept study

  Milne-Ives, M., Fraser, L. K., Khan, A., Walker, D., van Velthoven, M. H., May, J., Wolfe, I., Harding, T. & Meinert, E., 7 Mar 2022, (Accepted/In press) In: JMIR Research Protocols.

  Research output: Contribution to journal › Article › peer-review

  Open Access

• Measuring quality of dying, death and end-of-life care for children and young people: a scoping review of available tools

  Mayland, C., Sunderland, K., Cooper, M., Taylor, P., Powell, P., Ziegler, L., Cox, V., Gillman, C., Turner, N., Flemming, K. & Fraser, L. K., 19 May 2022, (Accepted/In press) In: Palliative Medicine.

  Research output: Contribution to journal › Article › peer-review

  Open Access

  File

• MRICS categorisation and emergency hospital admissions for children with cerebral palsy: a longitudinal, population-based study

  Horridge, K., Tinkler, R., Harvey, C., DeKiewiet, G., Munro, S. & Fraser, L. K., 9 May 2022, In: Developmental Medicine and Child Neurology. 64, 6, p. 734-742

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Polypharmacy in children and young people with life-limiting conditions from 2000 to 2015: A Repeated Cross-sectional Study in England

  Fraser, L. K., Gibson-Smith, D., Jarvis, S. W., Papworth, A. J., Neefjes, V., Hills, M., Doran, T. & Taylor, J., 3 Sep 2022, In: Journal of pain and symptom management. 64, 3, p. 213-221.e1 9 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Regional perspectives on the coordination and delivery of paediatric end-of-life care in the UK: a nested qualitative study

  Papworth, A. J., Hackett, J., Walker, G., Beresford, B. A. & Fraser, L. K., 7 Sep 2022.

  Research output: Contribution to conference › Paper

• Symptom control and survival for people severely ill with COVID-19: a multicentre cohort study

  Higginson, I., Hocaoglu, M., Fraser, L. K., Maddocks, M., Sleeman, K., Oluyase, A. O., Chambers, R., Preston, N., Dunleavy, L., Bradshaw, A., Bajwah, S., Murtagh, F. E. M. & Walshe, C., 22 Jun 2022, (E-pub ahead of print) In: Journal of pain and symptom management.

  Research output: Contribution to journal › Article › peer-review

  Open Access

  File

• Symptom management in people dying with COVID-19: multinational observational study (CovPall)

  Oluyase, A. O., Bajwah, S., Sleeman, K., Walshe, C., Preston, N., Hocaoglu, M., Bradshaw, A., Chambers, R., Murtagh, F. E. M., Dunleavy, L., Maddocks, M., Fraser, L. K. & Higginson, I., 9 Aug 2022, (Accepted/In press) In: BMJ Supportive & Palliative Care.

  Research output: Contribution to journal › Article › peer-review

  Open Access

  File

• The health of mothers of children with a life-limiting condition: a qualitative interview study

  Fisher, V., Atkin, K. M. & Fraser, L. K., 4 Aug 2022, (Accepted/In press) In: Palliative Medicine.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Which children and young people are at higher risk of severe disease and death after hospitalisation with SARS-CoV-2 infection in children and young people: a systematic review and individual patient meta-analysis

  Harwood, R., Yan, H., Talawila De Camara, N., Smith, C., Ward, J., Tudur-Smith, C., Linney, M., Clark, M., Whittaker, E., Saatci, D., Davis, P. J., Luyt, K., Draper, E., Kenny, S. E., Fraser, L. K. & Viner, R. M., 11 Feb 2022, In: EClinicalMedicine. 44, 27 p., 101287.

  Research output: Contribution to journal › Article › peer-review

  Open Access

  File
• 2021

  A systematic review of measures of breakthrough pain and their psychometric properties (Journal of Pain and Symptom Management)

  Liossi, C., Greenfield, K., Schoth, D. E., Mott, C., Jassal, S., Fraser, L. K., Rajapakse, D., Howard, R., Johnson, M., Anderson, A-K. & Harrop, E., Nov 2021, In: Journal of pain and symptom management. 62, 5, p. 1041-1064

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Burnout in the UK children’s hospice workforce: findings from the SWiCH study

  Papworth, A. J., Beresford, B. A., Fraser, L. K., Mukherjee, S. K. M., Bedendo, A. & Taylor, J., 21 Oct 2021.

  Research output: Contribution to conference › Poster

• Change in activity of palliative care services during Covid-19 pandemic: a multi-national survey (CovPall)

  Sleeman, K., Cripps, R., Murtagh, F. E. M., Oluyase, A. O., Hocaoglu, M., Maddocks, M., Walshe, C., Preston, N., Dunleavy, L., Bradshaw, A., Bajwah, S., Higginson, I. & Fraser, L. K., 20 Dec 2021, (E-pub ahead of print) In: Journal of Palliative Medicine. 7 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

  File

• Development of a managed clinical network for children's palliative care - a qualitative evaluation

  Papworth, A. J., Fraser, L. K. & Taylor, J., 22 Jan 2021, In: BMC Palliative Care. 20, 20, 12 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

  File

• Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality

  Coombes, L., Bristowe, K., Ellis-Smith, C., Aworinde, J., Fraser, L. K., Bluebond-Langner, M., Chambers, L., Murtagh, F. E. M. & Harding, R., Jul 2021, In: Quality of life research. 30, 7, p. 1830-1832

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Estimation of age of transition from children's to adult healthcare for young people with long term conditions using linked routinely collected healthcare data

  Jarvis, S. W., Richardson, G., Flemming, K. & Fraser, L. K., 11 Aug 2021, (Accepted/In press) In: International Journal of Population Data Science. 6, 1

  Research output: Contribution to journal › Article › peer-review

  Open Access

  File

• Experiences of fathers of children with a life-limiting condition: a systematic review and qualitative synthesis

  Fisher, V., Fraser, L. K. & Taylor, J., 17 Jun 2021, In: BMJ Supportive & Palliative Care. 13, p. 15-26 12 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

  File

• Health of mothers of children with a life-limiting condition: a comparative cohort study

  Fraser, L. K., Murtagh, F. E. M., Aldridge, J., Sheldon, T. A., Gilbody, S. & Hewitt, C. E., 17 Sep 2021, In: Archives of Disease in Childhood. 106, p. 987-993 7 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Outcomes for gastrostomy‐fed children and their parents: qualitative findings from the ‘Your Tube’ study

  Maddison, J. R., Taylor, J., O'Neill, M., Cade, J., Hewitt, C. E., Horridge, K., McCarter, A., Fraser, L. K. & Beresford, B. A., 22 Aug 2021, In: Developmental Medicine and Child Neurology. 63, 9, p. 1099-1106 8 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Palliative care for teenagers and young adults - the need for more evidence

  Ziegler, L. & Fraser, L. K., 31 Aug 2021, (E-pub ahead of print) In: Palliative Medicine. 2 p.

  Research output: Contribution to journal › Editorial › peer-review

  Open Access

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• Prohibit, protect or adapt: The changing role of volunteers in palliative and hospice care services during the COVID-19 pandemic. A multinational survey (CovPall)

  Walshe, C., Garner, I., Dunleavy, L., Preston, N., Bradshaw, A., Cripps, R., Bajwah, S., Sleeman, K., Hocaoglu, M., Maddocks, M., Murtagh, F. E. M., Oloyase, A., Fraser, L. K. & Higginson, I., 6 Sep 2021, (Accepted/In press) In: International Journal of Health Policy and Management .

  Research output: Contribution to journal › Article › peer-review

  Open Access

  File

• Risk factors for PICU admission and death amongst children and young people hospitalized with COVID-19 and PIMS-TS in England durng the first pandemic year

  Ward, J., Harwood, R., Smith, C., Kenny, S. E., Clark, M., Davis, P. J., Draper, E., Hargreaves, D., Ladhani, S., Linney, M., Luyt, K., Turner, S., Whittaker, E., Fraser, L. K. & Viner, R. M., 20 Dec 2021, (E-pub ahead of print) In: Nature Medicine. 28, p. 193-200

  Research output: Contribution to journal › Article › peer-review

  Open Access

  File

• Specialist palliative care services response to ethnic minority groups with COVID-19: equal but inequitable—an observational study

  Bajwah, S., Koffman, J., Hussain, J. A., Bradshaw, A., Hocaoglu, M., Fraser, L. K., Oluyase, A. O., Allwin, C., Dunleavy, L., Preston, N., Cripps, R., Maddocks, M., Sleeman, K., Higginson, I., Walshe, C. & Murtagh, F. E. M., 12 Sep 2021, (E-pub ahead of print) In: BMJ Supportive & Palliative Care. 10 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

  File

• Staff wellbeing in children's hospices (SWiCH)

  Taylor, J., Papworth, A. J., Beresford, B. A., Mukherjee, S. K. M. & Fraser, L. K., 25 Mar 2021.

  Research output: Contribution to conference › Abstract

• The challenges of caring for people dying from COVID-19: a multinational, observational study (CovPall)

  Oluyase, A. O., Hocaoglu, M., Cripps, R., Maddocks, M., Walshe, C., Fraser, L. K., Preston, N., Dunleavy, L., Bradshaw, A., Murtagh, F. E. M., Bajwah, S., Sleeman, K. & Higginson, I., 5 Feb 2021, (E-pub ahead of print) In: Journal of pain and symptom management.

  Research output: Contribution to journal › Article › peer-review

  Open Access

  File

• The SWiCH Study: A National Survey of Staff Wellbeing in UK Children’s Hospices

  Papworth, A. J., Beresford, B., Fraser, L. K., Aldridge, J., Mukherjee, S. K. M. & Taylor, J., 20 Sep 2021.

  Research output: Contribution to conference › Poster › peer-review

• Top ten tips palliative care clinicians should know about prognostication in children

  Bergstraesser, E., Thienprayoon, R., Brook, L., Fraser, L. K., Hynson, J., Rosenberg, A., Snaman, J., Weaver, M., Widger, K., Zernikow, B., Jones, C. & Schlogl, M., 27 Oct 2021, In: Journal of Palliative Medicine. 24, 11, p. 1725-1731

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Transition of children with life-limiting conditions to adult care and healthcare use: a systematic review

  Jarvis, S. W., Roberts, D., Flemming, K., Richardson, G. & Fraser, L. K., 1 Dec 2021, In: Pediatric Research. 90, p. 1120–1131 12 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Understanding and addressing challenges for Advance Care Planning in the COVid-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services

  Bradshaw, A., Dunleavy, L., Walshe, C., Preston, N., Cripps, R., Hocaoglu, M., Bajwah, S., Maddocks, M., Oluyase, A. O., Sleeman, K., Higginson, I., Fraser, L. K. & Murtagh, F. E. M., 1 Jul 2021, In: Palliative Medicine. 35, 7, p. 1225–1237 13 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data

  Bayly, J., Bradshaw, A., Fettes, L., Omarjee, M., Talbot-Rice, H., Walshe, C., Sleeman, K., Bajwah, S., Dunleavy, L., Hocaoglu, M., Oluyase, A. O., Garner, I., Cripps, R., Preston, N., Fraser, L. K., Murtagh, F. E. M., Higginson, I. & Maddocks, M., 29 Dec 2021, (E-pub ahead of print) In: Palliative Medicine. 36, 2, p. 319-331 23 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• What does economic evaluation mean in the context of children at the end of their life?

  Hinde, S., Weatherly, H. L. A., Walker, G. & Fraser, L. K., 3 Nov 2021, In: International Journal of Environmental Research and Public Health (IJERPH). 18, 21, 11 p., 11562.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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• ‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall)

  Dunleavy, L., Preston, N., Bajwah, S., Bradshaw, A., Cripps, R., Fraser, L. K., Maddocks, M., Hocaoglu, M., Murtagh, F. E. M., Oluyase, A. O., Sleeman, K., Higginson, I. J. & Walshe, C., 1 May 2021, In: Palliative Medicine. 35, 5, p. 814-829 16 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

  File
• 2020

  200 Polypharmacy in children and young people with life-limiting conditions: an observational cohort study in England

  Taylor, J., Gibson-Smith, D., Jarvis, S. W., Papworth, A. J., Hills, M., Neefjes, V. & Fraser, L. K., Mar 2020.

  Research output: Contribution to conference › Poster › peer-review

  Open Access

• 9 Staff wellbeing in children's hospices (SWiCH): a mixed-methods study

  Taylor, J., Papworth, A. J., Aldridge, J., Fraser, L. K., Mukherjee, S. K. M. & Beresford, B. A., Mar 2020.

  Research output: Contribution to conference › Poster › peer-review

  Open Access

• A protocol for a systematic review and meta-analysis to identify measures of breakthrough pain and evaluate their psychometric properties

  Greenfield, K., Holley, S., Schoth, D. E., Bayliss, J., Anderson, A-K., Jassal, S., Rajapakse, D., Fraser, L. K., Mott, C., Johnson, M., Wong, I., Howard, R., Harrop, E. & Liossi, C., 29 Mar 2020, In: BMJ Open. 10, 3, 8 p., e035541.

  Research output: Contribution to journal › Article › peer-review

  Open Access

  File

• Embedding public involvement in paediatric palliative care research: an evaluation of activity and impact

  Taylor, J., Papworth, A. J., Aldridge, J., Hackett, J., O'Neill, M., Beresford, B. & Fraser, L. K., 21 Sep 2020.

  Research output: Contribution to conference › Poster › peer-review

• Estimating the current and future prevalence of life-limiting conditions in children in England

  Fraser, L. K., Gibson-Smith, D., Jarvis, S. W., Norman, P. & Parslow, R. C., 31 Oct 2020, (Accepted/In press) In: Palliative Medicine.

  Research output: Contribution to journal › Article › peer-review

  Open Access

  File

• Exploring the feasibility of embedding early and continuous public involvement in paediatric palliative care research: the experience of the Martin House Research Centre

  Taylor, J., Aldridge, J., Beresford, B. A., Hackett, J. & Fraser, L. K., 2020, (Accepted/In press).

  Research output: Contribution to conference › Poster › peer-review

• GPs’ role in caring for children and young people with life limiting conditions – a retrospective cohort study

  Jarvis, S. W., Parslow, R., Hewitt, C. E., Mitchell, S. & Fraser, L. K., 10 Feb 2020, In: British Journal of General Practice. p. 1-9 9 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

  File

• Health care utilization in overweight an obese children: A systematic review and meta-analysis

  Hasan, T., Ainscough, T. S., West, J. & Fraser, L. K., 14 Aug 2020, (Accepted/In press) In: BMJ Open.

  Research output: Contribution to journal › Article › peer-review

  Open Access

  File

• Managing and sharing research data in children's palliative care: risks, benefits, and imponderables

  Harris, N., Noyes, J., Fraser, L. K., Lapwood, S., Harrop, E., Blackburn, M., Price, J., Chambers, L. & Bluebond-Langner, M., 10 Sep 2020, (E-pub ahead of print) In: Journal of Advanced Nursing. p. 1-4 4 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

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