Standardised measures for people living with dementia: experiences, observations and implications

Relatively little is known about the practice and implications of using standardised research measures with people living with dementia at different degrees of severity. It is crucial that we learn more about the ways that dementia symptoms and their progression can affect both the quality (reliability and validity) of quantitative data, and the experiences of research participants.

I plan to investigate the quantitative data collection encounter from the perspectives of participants living with dementia and research workers administering standardised measures. I will also consider the impact of dementia symptoms as they change over time, combined with the interview context and questionnaire content, on the types and quality of data collected.