A cohort study of the impact of COVID-19 on the quality of life of people newly diagnosed with dementia and their family carers

Ben Hicks, Sanna Read, Bo Hu, Raphael Wittenberg, Amanda Grahamslaw, Anomita Karim, Evelyn Martin, Eleanor Nuzum, Jacob Reichental, Alice Russell, Elaine Siddle, Bryony Storey, Eva Tipping, Yvonne Frances Birks, Kate Baxter, Carol Brayne, Nicola Brimblecombe, Margaret Dangoor, Josie Dixon, Kate GridleyPeter R Harris, Martin Knapp, Eleanor Miles, Rotem Perach, Louise Robinson, Jennifer Rusted, Robert Stewart, Alan Thomas

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COVID-19 has negatively impacted people with dementia and family
carers, yet little is known about effects on overall quality of life. METHODS: UK cohort study with pre- and post-pandemic data from 114 carers and 93 people recently diagnosed with dementia. Latent Growth Curve modelling examined change in quality of life. RESULTS: Carers reported significant decline in quality of life, while that of people with dementia did not change. In multivariable analyses, greater cognitive impairment, deprivation, study site, and lower number of post-diagnostic clinic contacts predicted greater decline in carer quality of life. DISCUSSION: Maintaining life quality for people with dementia during the pandemic appears to have come at the expense of their family carers. This inequity has fallen hardest on those caring for people with more severe dementia, in deprived areas, and with least support from memory services. These effects may be prevented or reversed by post-diagnostic care.
Original languageEnglish
Article numbere12236
Number of pages14
JournalAlzheimer's and Dementia: Translational Research & Clinical Interventions
Issue number1
Early online date28 Apr 2022
Publication statusPublished - 2 May 2022

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