By the same authors

A cohort study of the impact of COVID-19 on the quality of life of people newly diagnosed with dementia and their family carers

Research output: Contribution to journalArticlepeer-review

Author(s)

  • Ben Hicks
  • Sanna Read
  • Bo Hu
  • Raphael Wittenberg
  • Amanda Grahamslaw
  • Anomita Karim
  • Evelyn Martin
  • Eleanor Nuzum
  • Jacob Reichental
  • Alice Russell
  • Elaine Siddle
  • Bryony Storey
  • Eva Tipping
  • Carol Brayne
  • Nicola Brimblecombe
  • Margaret Dangoor
  • Josie Dixon
  • Peter R Harris
  • Martin Knapp
  • Eleanor Miles
  • Rotem Perach
  • Louise Robinson
  • Jennifer Rusted
  • Robert Stewart
  • Alan Thomas

Department/unit(s)

Publication details

JournalAlzheimer's and Dementia: Translational Research & Clinical Interventions
DateAccepted/In press - 23 Nov 2021
DateE-pub ahead of print - 28 Apr 2022
DatePublished (current) - 2 May 2022
Issue number1
Volume8
Number of pages14
Early online date28/04/22
Original languageEnglish

Abstract

COVID-19 has negatively impacted people with dementia and family
carers, yet little is known about effects on overall quality of life. METHODS: UK cohort study with pre- and post-pandemic data from 114 carers and 93 people recently diagnosed with dementia. Latent Growth Curve modelling examined change in quality of life. RESULTS: Carers reported significant decline in quality of life, while that of people with dementia did not change. In multivariable analyses, greater cognitive impairment, deprivation, study site, and lower number of post-diagnostic clinic contacts predicted greater decline in carer quality of life. DISCUSSION: Maintaining life quality for people with dementia during the pandemic appears to have come at the expense of their family carers. This inequity has fallen hardest on those caring for people with more severe dementia, in deprived areas, and with least support from memory services. These effects may be prevented or reversed by post-diagnostic care.

Bibliographical note

© 2022 The Authors.

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