A Good Life with Dementia: Realist evaluation of a post-diagnostic peer-led course, run by and for people with dementia

Kate Gridley; Rachel Claire Mann

A Good Life with Dementia: Realist evaluation of a post-diagnostic peer-led course, run by and for people with dementia

Research output: Contribution to conference › Paper

Abstract

The Good Life with Dementia approach was created by and for people with dementia so that those with lived experience could provide structured support to others newly diagnosed with the condition. The programme is based on some underlying ideas (theories) about why such an approach might work more effectively than traditional (professional-led) forms of post-diagnostic support. A team at the University of York, in collaboration with Tees Esk and Wear Valley’s NHS Foundation Trust, has been working with peer tutors and other stakeholders living with dementia to make these underlying theories explicit. In the NIHR Three Schools funded project: Understanding the Role of 'Peer Tutors' in Post-Diagnostic Support for People with Dementia: A Realist Process Evaluation of the Good Life with Dementia Approach, theories of change are being tested and refined to clarify: how the peer-tutor programme might improve things; who it might improve things for; to what extent; and in what contexts. We are also exploring what outcomes the programme might influence, and which factors influence whether these outcomes are achieved.
In this session we present early findings from initial stages of this evaluation, including observations of Good Life course sessions and initial theories of change. As with all elements of the programme and associated research, the presentation was designed in collaboration with experts by experience, whose voices have and will continue to feed into developing theories. A next step will be to test out initial theories in different contexts, including with stakeholders from South Asian communities.

Original language	English
Publication status	Published - 7 Jul 2023
Event	British Society of Gerontology 52nd Annual Conference: Inclusive participation through ageing - Norwich, United Kingdom Duration: 5 Jul 2023 → 7 Jul 2023 Conference number: 52 https://www.britishgerontology.org/events-and-courses/bsg-annual-conference

Conference

Conference	British Society of Gerontology 52nd Annual Conference
Abbreviated title	BSG
Country/Territory	United Kingdom
City	Norwich
Period	5/07/23 → 7/07/23
Internet address	https://www.britishgerontology.org/events-and-courses/bsg-annual-conference

Keywords

DEMENTIA
Peer-led
Post-diagnostic support
Peer-support
Peer training
Dementia
Co-production

Access to Document

A Good Life with Dementia WITH FILM BSG Kate Gridley and Rachel Mann July 2023

Cite this

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title = "A Good Life with Dementia: Realist evaluation of a post-diagnostic peer-led course, run by and for people with dementia ",

abstract = "The Good Life with Dementia approach was created by and for people with dementia so that those with lived experience could provide structured support to others newly diagnosed with the condition. The programme is based on some underlying ideas (theories) about why such an approach might work more effectively than traditional (professional-led) forms of post-diagnostic support. A team at the University of York, in collaboration with Tees Esk and Wear Valley{\textquoteright}s NHS Foundation Trust, has been working with peer tutors and other stakeholders living with dementia to make these underlying theories explicit. In the NIHR Three Schools funded project: Understanding the Role of 'Peer Tutors' in Post-Diagnostic Support for People with Dementia: A Realist Process Evaluation of the Good Life with Dementia Approach, theories of change are being tested and refined to clarify: how the peer-tutor programme might improve things; who it might improve things for; to what extent; and in what contexts. We are also exploring what outcomes the programme might influence, and which factors influence whether these outcomes are achieved. In this session we present early findings from initial stages of this evaluation, including observations of Good Life course sessions and initial theories of change. As with all elements of the programme and associated research, the presentation was designed in collaboration with experts by experience, whose voices have and will continue to feed into developing theories. A next step will be to test out initial theories in different contexts, including with stakeholders from South Asian communities. ",

keywords = "DEMENTIA, Peer-led, Post-diagnostic support, Peer-support, Peer training, Dementia, Co-production",

author = "Kate Gridley and Mann, {Rachel Claire}",

year = "2023",

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language = "English",

note = "British Society of Gerontology 52nd Annual Conference : Inclusive participation through ageing, BSG ; Conference date: 05-07-2023 Through 07-07-2023",

url = "https://www.britishgerontology.org/events-and-courses/bsg-annual-conference",

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T1 - A Good Life with Dementia

T2 - British Society of Gerontology 52nd Annual Conference

AU - Gridley, Kate

AU - Mann, Rachel Claire

N1 - Conference code: 52

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N2 - The Good Life with Dementia approach was created by and for people with dementia so that those with lived experience could provide structured support to others newly diagnosed with the condition. The programme is based on some underlying ideas (theories) about why such an approach might work more effectively than traditional (professional-led) forms of post-diagnostic support. A team at the University of York, in collaboration with Tees Esk and Wear Valley’s NHS Foundation Trust, has been working with peer tutors and other stakeholders living with dementia to make these underlying theories explicit. In the NIHR Three Schools funded project: Understanding the Role of 'Peer Tutors' in Post-Diagnostic Support for People with Dementia: A Realist Process Evaluation of the Good Life with Dementia Approach, theories of change are being tested and refined to clarify: how the peer-tutor programme might improve things; who it might improve things for; to what extent; and in what contexts. We are also exploring what outcomes the programme might influence, and which factors influence whether these outcomes are achieved. In this session we present early findings from initial stages of this evaluation, including observations of Good Life course sessions and initial theories of change. As with all elements of the programme and associated research, the presentation was designed in collaboration with experts by experience, whose voices have and will continue to feed into developing theories. A next step will be to test out initial theories in different contexts, including with stakeholders from South Asian communities.

AB - The Good Life with Dementia approach was created by and for people with dementia so that those with lived experience could provide structured support to others newly diagnosed with the condition. The programme is based on some underlying ideas (theories) about why such an approach might work more effectively than traditional (professional-led) forms of post-diagnostic support. A team at the University of York, in collaboration with Tees Esk and Wear Valley’s NHS Foundation Trust, has been working with peer tutors and other stakeholders living with dementia to make these underlying theories explicit. In the NIHR Three Schools funded project: Understanding the Role of 'Peer Tutors' in Post-Diagnostic Support for People with Dementia: A Realist Process Evaluation of the Good Life with Dementia Approach, theories of change are being tested and refined to clarify: how the peer-tutor programme might improve things; who it might improve things for; to what extent; and in what contexts. We are also exploring what outcomes the programme might influence, and which factors influence whether these outcomes are achieved. In this session we present early findings from initial stages of this evaluation, including observations of Good Life course sessions and initial theories of change. As with all elements of the programme and associated research, the presentation was designed in collaboration with experts by experience, whose voices have and will continue to feed into developing theories. A next step will be to test out initial theories in different contexts, including with stakeholders from South Asian communities.

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KW - Post-diagnostic support

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KW - Peer training

KW - Dementia

KW - Co-production

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