A simple screening method for determining knowledge of the appropriate levels of activity and risk behaviour in young people with congenital cardiac conditions

L Kendall; J Parsons; P Sloper; R Lewin

doi:10.1017/S1047951107000285

A simple screening method for determining knowledge of the appropriate levels of activity and risk behaviour in young people with congenital cardiac conditions

L Kendall, J Parsons, P Sloper, R Lewin

Research output: Contribution to journal › Article › peer-review

Abstract

Objective: To assess a novel method for assessing risk and providing advice about activity to children and young people with congenital cardiac disease and their parents. Design and setting: Questionnaire survey in outpatient clinics at a tertiary centre dealing with congenital cardiac disease, and 6 peripheral clinics. Interventions: Children or their parents completed a brief questionnaire. If this indicated a desire for help, or a serious mismatch between advised and real level of activity, they were telephoned by a physiotherapist. Main measures of outcome: Knowledge about appropriate levels of activity, and identification of the number exercising at an unsafe level, the number seeking help, and the type of help required. Results: 253/258 (98.0%) questionnaires were returned, with 119/253 (47.0%) showing incorrect responses in their belief about their advised level of exercise; 17/253 (6.7%) had potentially dangerous overestimation of exercise. Asked if they wanted advice 93/253 (36.8%) said “yes”, 43/253 (17.0%) “maybe”, and 117/253 (46.2%) “no”. Of those contacted by phone to give advice, 72.7% (56/77) required a single contact and 14.3% (11/77) required an intervention that required more intensive contact lasting from 2 up to 12 weeks. Of the cohort, 3.9% (3/77) were taking part in activities that put them at significant risk. Conclusions: There is a significant lack of knowledge about appropriate levels of activity, and a desire for further advice, in children and young people with congenital cardiac disease. A few children may be at very significant risk. These needs can be identified, and clinical risk reduced, using a brief self-completed questionnaire combined with telephone follow-up from a suitably knowledgeable physiotherapist.

Original language	English
Pages (from-to)	151-157
Number of pages	6
Journal	Cardiology in the Young
Volume	17
Issue number	2
DOIs	https://doi.org/10.1017/S1047951107000285
Publication status	Published - Apr 2007

Bibliographical note

Keywords

congenital heart defects
physical activity
exercise prescription
risk behaviour
physiotherapy
multidisciplinary team
HEART-DISEASE
PHYSICAL-ACTIVITY
CARDIOVASCULAR-DISEASE
SPORTS PARTICIPATION
CLINICAL CARDIOLOGY
REHABILITATION
EXERCISE
RECOMMENDATIONS
PREVENTION
STATEMENT

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10.1017/S1047951107000285

lewinr13.pdf

http://dx.doi.org/10.1017/S1047951107000285

Cite this

@article{8f94cc7fea8c42a0a2847f6d1de57607,

title = "A simple screening method for determining knowledge of the appropriate levels of activity and risk behaviour in young people with congenital cardiac conditions",

abstract = "Objective: To assess a novel method for assessing risk and providing advice about activity to children and young people with congenital cardiac disease and their parents. Design and setting: Questionnaire survey in outpatient clinics at a tertiary centre dealing with congenital cardiac disease, and 6 peripheral clinics. Interventions: Children or their parents completed a brief questionnaire. If this indicated a desire for help, or a serious mismatch between advised and real level of activity, they were telephoned by a physiotherapist. Main measures of outcome: Knowledge about appropriate levels of activity, and identification of the number exercising at an unsafe level, the number seeking help, and the type of help required. Results: 253/258 (98.0%) questionnaires were returned, with 119/253 (47.0%) showing incorrect responses in their belief about their advised level of exercise; 17/253 (6.7%) had potentially dangerous overestimation of exercise. Asked if they wanted advice 93/253 (36.8%) said “yes”, 43/253 (17.0%) “maybe”, and 117/253 (46.2%) “no”. Of those contacted by phone to give advice, 72.7% (56/77) required a single contact and 14.3% (11/77) required an intervention that required more intensive contact lasting from 2 up to 12 weeks. Of the cohort, 3.9% (3/77) were taking part in activities that put them at significant risk. Conclusions: There is a significant lack of knowledge about appropriate levels of activity, and a desire for further advice, in children and young people with congenital cardiac disease. A few children may be at very significant risk. These needs can be identified, and clinical risk reduced, using a brief self-completed questionnaire combined with telephone follow-up from a suitably knowledgeable physiotherapist.",

keywords = "congenital heart defects, physical activity, exercise prescription, risk behaviour, physiotherapy, multidisciplinary team, HEART-DISEASE, PHYSICAL-ACTIVITY, CARDIOVASCULAR-DISEASE, SPORTS PARTICIPATION, CLINICAL CARDIOLOGY, REHABILITATION, EXERCISE, RECOMMENDATIONS, PREVENTION, STATEMENT",

author = "L Kendall and J Parsons and P Sloper and R Lewin",

note = "{\textcopyright} 2007 Cambridge University Press. Reproduced in accordance with the publisher's self archiving policy. (Available from April 2008)",

year = "2007",

month = apr,

doi = "10.1017/S1047951107000285",

language = "English",

volume = "17",

pages = "151--157",

journal = "Cardiology in the Young",

issn = "1047-9511",

publisher = "Cambridge University Press",

number = "2",

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TY - JOUR

T1 - A simple screening method for determining knowledge of the appropriate levels of activity and risk behaviour in young people with congenital cardiac conditions

AU - Kendall, L

AU - Parsons, J

AU - Sloper, P

AU - Lewin, R

PY - 2007/4

Y1 - 2007/4

N2 - Objective: To assess a novel method for assessing risk and providing advice about activity to children and young people with congenital cardiac disease and their parents. Design and setting: Questionnaire survey in outpatient clinics at a tertiary centre dealing with congenital cardiac disease, and 6 peripheral clinics. Interventions: Children or their parents completed a brief questionnaire. If this indicated a desire for help, or a serious mismatch between advised and real level of activity, they were telephoned by a physiotherapist. Main measures of outcome: Knowledge about appropriate levels of activity, and identification of the number exercising at an unsafe level, the number seeking help, and the type of help required. Results: 253/258 (98.0%) questionnaires were returned, with 119/253 (47.0%) showing incorrect responses in their belief about their advised level of exercise; 17/253 (6.7%) had potentially dangerous overestimation of exercise. Asked if they wanted advice 93/253 (36.8%) said “yes”, 43/253 (17.0%) “maybe”, and 117/253 (46.2%) “no”. Of those contacted by phone to give advice, 72.7% (56/77) required a single contact and 14.3% (11/77) required an intervention that required more intensive contact lasting from 2 up to 12 weeks. Of the cohort, 3.9% (3/77) were taking part in activities that put them at significant risk. Conclusions: There is a significant lack of knowledge about appropriate levels of activity, and a desire for further advice, in children and young people with congenital cardiac disease. A few children may be at very significant risk. These needs can be identified, and clinical risk reduced, using a brief self-completed questionnaire combined with telephone follow-up from a suitably knowledgeable physiotherapist.

AB - Objective: To assess a novel method for assessing risk and providing advice about activity to children and young people with congenital cardiac disease and their parents. Design and setting: Questionnaire survey in outpatient clinics at a tertiary centre dealing with congenital cardiac disease, and 6 peripheral clinics. Interventions: Children or their parents completed a brief questionnaire. If this indicated a desire for help, or a serious mismatch between advised and real level of activity, they were telephoned by a physiotherapist. Main measures of outcome: Knowledge about appropriate levels of activity, and identification of the number exercising at an unsafe level, the number seeking help, and the type of help required. Results: 253/258 (98.0%) questionnaires were returned, with 119/253 (47.0%) showing incorrect responses in their belief about their advised level of exercise; 17/253 (6.7%) had potentially dangerous overestimation of exercise. Asked if they wanted advice 93/253 (36.8%) said “yes”, 43/253 (17.0%) “maybe”, and 117/253 (46.2%) “no”. Of those contacted by phone to give advice, 72.7% (56/77) required a single contact and 14.3% (11/77) required an intervention that required more intensive contact lasting from 2 up to 12 weeks. Of the cohort, 3.9% (3/77) were taking part in activities that put them at significant risk. Conclusions: There is a significant lack of knowledge about appropriate levels of activity, and a desire for further advice, in children and young people with congenital cardiac disease. A few children may be at very significant risk. These needs can be identified, and clinical risk reduced, using a brief self-completed questionnaire combined with telephone follow-up from a suitably knowledgeable physiotherapist.

KW - congenital heart defects

KW - physical activity

KW - exercise prescription

KW - risk behaviour

KW - physiotherapy

KW - multidisciplinary team

KW - HEART-DISEASE

KW - PHYSICAL-ACTIVITY

KW - CARDIOVASCULAR-DISEASE

KW - SPORTS PARTICIPATION

KW - CLINICAL CARDIOLOGY

KW - REHABILITATION

KW - EXERCISE

KW - RECOMMENDATIONS

KW - PREVENTION

KW - STATEMENT

U2 - 10.1017/S1047951107000285

DO - 10.1017/S1047951107000285

M3 - Article

SN - 1047-9511

VL - 17

SP - 151

EP - 157

JO - Cardiology in the Young

JF - Cardiology in the Young

IS - 2

ER -