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From the same journal

Addressing possible problems with patients’ expectations, plans and decisions for the future: one strategy used by experienced clinicians in advance care planning conversations

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Publication details

JournalPatient Education and Counseling
DateAccepted/In press - 9 Nov 2018
DatePublished (current) - 15 Nov 2018
Original languageEnglish

Abstract

Abstract

Objective
Giving terminally ill people opportunities to participate in advance care planning involves tensions between: endorsing and supporting patients’ expectations, plans and decisions, and addressing how realistic these are. The latter risks exerting undue pressure to change plans; undermining autonomy; jeopardising therapeutic relationships. Our objective is to describe how experienced hospice doctors raise potential/actual problems with patients’ expectations, plans or decisions.

Methods
Conversation analysis of video-recorded consultations between five UK hospice consultants, 37 patients and their companions.

Results
Eleven episodes involving five doctors were found. In all of these we identified a ‘Hypothetical Scenario Sequence’ where doctors raise a hypothetical future scenario wherein current plans/expectations turn out to be problematic, then engage patients in discussing what could be done about this. We describe features of this sequence and how it can circumvent the risks of addressing problems with patients’ expectations and plans.

Conclusion
Our research breaks new ground, showing that by treating expectations, plans and decisions as potentially not actually problematic, practitioners can recognise and support patients’ preferences whilst preparing them for possible difficulties and inevitable uncertainties.

Practice Implications
Where professionals judge it appropriate to raise problems about patients’ preferences, plans and decisions, this sequence can manage the associated risks.

Bibliographical note

© 2018 Published by Elsevier B.V. This is an author-produced version of the published paper. Uploaded in accordance with the publisher’s self-archiving policy.

    Research areas

  • Advance care planning, Decision-making, Conversation analysis, End-of-life, Palliative care, Managing patient expectations, Contingency planning

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