An Assessment of the Court's Role in the Withdrawal of Clinically Assisted Nutrition and Hydration from Patients in the Permanent Vegetative State

TY - JOUR

T1 - An Assessment of the Court's Role in the Withdrawal of Clinically Assisted Nutrition and Hydration from Patients in the Permanent Vegetative State

AU - Halliday, Simon

AU - Formby, Adam

AU - Cookson, Richard

PY - 2015

Y1 - 2015

N2 - In this article we reassess the court’s role in the withdrawal of clinically assisted nutrition and hydration from patients in the permanent vegetative state, focusing on cases where health care teams and families agree that such in the patient’s best interest. As well as including a doctrinal analysis, the reassessment draws on empirical data from the families of patients with prolonged disorders of consciousness, on economic data about the costs of the declaratory relief process to the NHS, and on comparative legal data about the comparable procedural requirements in other jurisdictions. We show that, following the decision in the Bland case, the role of the Court of Protection is now restricted to the direct supervision of the PVS diagnosis as a matter of proof. We argue that this is an inappropriate role for the court, and one that sits in some tension with the best interests of patients. The blanket requirement of declaratory relief for all cases is economically expensive for the NHS and thus deprives other NHS patients from health care. We demonstrate that many of the ancillary benefits currently offered by declaratory relief could be achieved by other means. Ultimately, we suggest that reform to the declaratory relief requirement is called for.

AB - In this article we reassess the court’s role in the withdrawal of clinically assisted nutrition and hydration from patients in the permanent vegetative state, focusing on cases where health care teams and families agree that such in the patient’s best interest. As well as including a doctrinal analysis, the reassessment draws on empirical data from the families of patients with prolonged disorders of consciousness, on economic data about the costs of the declaratory relief process to the NHS, and on comparative legal data about the comparable procedural requirements in other jurisdictions. We show that, following the decision in the Bland case, the role of the Court of Protection is now restricted to the direct supervision of the PVS diagnosis as a matter of proof. We argue that this is an inappropriate role for the court, and one that sits in some tension with the best interests of patients. The blanket requirement of declaratory relief for all cases is economically expensive for the NHS and thus deprives other NHS patients from health care. We demonstrate that many of the ancillary benefits currently offered by declaratory relief could be achieved by other means. Ultimately, we suggest that reform to the declaratory relief requirement is called for.

KW - Disorders of consciousness

KW - PVS

KW - Life-sustaining treatment

KW - Best interests

KW - Court of protection

KW - Declaratory relief

U2 - 10.1093/medlaw/fwv026

DO - 10.1093/medlaw/fwv026

M3 - Article

SN - 0967-0742

JO - Medical Law Review

JF - Medical Law Review

ER -