Caring for people with dementia with Lewy bodies and Parkinson’s dementia in UK care homes – A mixed methods study

G. Jackson, Elizabeth Newbronner, R Chamberlain, R Borthwick, C Yardley, K Boyle

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There is little known about the prevalence and care needs of people with dementia with Lewy bodies and
Parkinson’s dementia in care homes. These are complex conditions with particular issues around
providing good quality care. This study sets out to estimate the prevalence of these conditions and to
establish the care staff’s knowledge about them, using a survey of care home managers and interviews
with key staff members. The prevalence of dementia in the homes involved with was estimated to be to
be 57%, with 7.4% of those with dementia having dementia with Lewy bodies and 4.1% having Parkinson’s
disease dementia. In spite of these conditions being relatively common, staff felt they were poorly
equipped in terms of knowledge and training to provide for their specific needs. This study demonstrates
a need for specific training and an increased awareness of these conditions.
C 2017 Published by Elsevier Masson SAS.
Original languageEnglish
Pages (from-to)146-152
Number of pages7
JournalEuropean Journal of Geriatric Medicine
Issue number2
Early online date10 Feb 2017
Publication statusPublished - 1 Apr 2017


  • Care homes
  • Dementia
  • Lewy bodies
  • Parkinson's
  • Prevalence

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