TY - JOUR
T1 - Children and young people's preferences and needs when using health technology to self-manage a long-term condition
T2 - a scoping review
AU - Court, Rosemary Jane
AU - Swallow, Veronica
AU - El-Yousfi, Sarab
AU - Gray-Burrows, Kara
AU - Sotir, Fiona
AU - Wheeler, Gemma
AU - Kellar, Ian
AU - Lee, Jia Mang
AU - Mitchell, Robyn
AU - Mlynarczyk, Wiktoria
AU - Ramavath, Arnav
AU - Dimitri, Paul
AU - Phillips, Bob
AU - Prodgers, Lucy
AU - Pownall, Madeleine
AU - Kowalczyk, Marcin
AU - Branchflower, Jacob
AU - Powell, Lauren
AU - Bhanbhro, Sadiq
AU - Weighall, Anna
AU - Martin-Kerry, Jacqueline
N1 - © Author(s) (or their employer(s)) 2024
PY - 2024/9/25
Y1 - 2024/9/25
N2 - BACKGROUND: The use of patient-facing health technologies to manage long-term conditions (LTCs) is increasing; however, children and young people (CYP) may have preferences about health technologies which they interact or engage with, that influence their decision to use these technologies.AIMS: To identify CYP's reported preferences about health technologies to self-manage LTCs.METHODS: We undertook a scoping review, searching MEDLINE, PsycINFO and CINAHL in July 2021. Searches were limited to papers published between January 2015 and July 2021. We included any health technologies used to manage physical and mental LTCs. Qualitative content analysis of study data was undertaken to categorise data into themes and quantitative data were described and visually represented. We engaged CYP with LTCs to support the review design, interpretation of findings and development of recommendations.RESULTS: 161 journal articles were included, describing preferences of CYP. Most included studies were undertaken in high-income countries. CYP's main preferences and needs were: design and functionality; privacy and sharing; customisation and personalisation of the technology; and interaction options within the technology.CONCLUSIONS: This review highlights important preferences and needs that CYP may have before using technologies to self-manage their LTC. These should be considered when developing technology for this population. Future research should involve CYP throughout the development of the technologies, from identifying their unmet needs through to final design, development, evaluation and implementation of the intervention.
AB - BACKGROUND: The use of patient-facing health technologies to manage long-term conditions (LTCs) is increasing; however, children and young people (CYP) may have preferences about health technologies which they interact or engage with, that influence their decision to use these technologies.AIMS: To identify CYP's reported preferences about health technologies to self-manage LTCs.METHODS: We undertook a scoping review, searching MEDLINE, PsycINFO and CINAHL in July 2021. Searches were limited to papers published between January 2015 and July 2021. We included any health technologies used to manage physical and mental LTCs. Qualitative content analysis of study data was undertaken to categorise data into themes and quantitative data were described and visually represented. We engaged CYP with LTCs to support the review design, interpretation of findings and development of recommendations.RESULTS: 161 journal articles were included, describing preferences of CYP. Most included studies were undertaken in high-income countries. CYP's main preferences and needs were: design and functionality; privacy and sharing; customisation and personalisation of the technology; and interaction options within the technology.CONCLUSIONS: This review highlights important preferences and needs that CYP may have before using technologies to self-manage their LTC. These should be considered when developing technology for this population. Future research should involve CYP throughout the development of the technologies, from identifying their unmet needs through to final design, development, evaluation and implementation of the intervention.
KW - Humans
KW - Child
KW - Adolescent
KW - Patient Preference
KW - Chronic Disease/therapy
KW - Self-Management/methods
KW - Biomedical Technology
U2 - 10.1136/archdischild-2023-326044
DO - 10.1136/archdischild-2023-326044
M3 - Review article
C2 - 39142825
SN - 0003-9888
VL - 109
SP - 826
EP - 835
JO - Archives of Disease in Childhood
JF - Archives of Disease in Childhood
IS - 10
ER -