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Choice and caring: the experiences of parents supporting young people with Autistic Spectrum Conditions as they move into adulthood

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JournalChildren & Society
DateE-pub ahead of print - 7 Nov 2014
DatePublished (current) - Nov 2015
Issue number6
Volume29
Pages (from-to)546-557
Early online date7/11/14
Original languageEnglish

Abstract

This paper reports findings about parents' experiences of caring for young people with Autistic Spectrum Conditions (ASCs) moving into adulthood. In-depth interviews were conducted with 38 parents of young people (15-21 years) with ASCs. Data were analysed thematically. In the perceived absence of service support, parents acted as 'care-coordinators' and 'life-supporters' for their child as they moved into adulthood. These roles came with little choice, emotional demands and personal restrictions. Being supported was important for parents, but preferences differed regarding what this should look like. Implications for policy are discussed.

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© 2014 John Wiley & Sons. This is an author produced version of a paper published in Children & Society. Uploaded in accordance with the publisher's self-archiving policy.

    Research areas

  • transition, social care services, young adults, autistic spectrum conditions, families, parents' perspectives, carers, choice

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