Choice and caring: the experiences of parents supporting young people with Autistic Spectrum Conditions as they move into adulthood

Gemma Frances Spiers

doi:10.1111/chso.12104

Choice and caring: the experiences of parents supporting young people with Autistic Spectrum Conditions as they move into adulthood

Gemma Frances Spiers

Social Policy Research Unit

Research output: Contribution to journal › Article › peer-review

Abstract

This paper reports findings about parents' experiences of caring for young people with Autistic Spectrum Conditions (ASCs) moving into adulthood. In-depth interviews were conducted with 38 parents of young people (15-21 years) with ASCs. Data were analysed thematically. In the perceived absence of service support, parents acted as 'care-coordinators' and 'life-supporters' for their child as they moved into adulthood. These roles came with little choice, emotional demands and personal restrictions. Being supported was important for parents, but preferences differed regarding what this should look like. Implications for policy are discussed.

Original language	English
Pages (from-to)	546-557
Journal	Children & Society
Volume	29
Issue number	6
Early online date	7 Nov 2014
DOIs	https://doi.org/10.1111/chso.12104
Publication status	Published - Nov 2015

Bibliographical note

Keywords

transition
social care services
young adults
autistic spectrum conditions
families
parents' perspectives
carers
choice

Access to Document

10.1111/chso.12104

GScs7nov2014
© 2014 John Wiley & Sons. This is an author produced version of a paper published in Children & Society. Uploaded in accordance with the publisher's self-archiving policy.
Accepted author manuscript, 349 KB

http://onlinelibrary.wiley.com/doi/10.1111/chso.12104/abstract

Transition to adult services and adulthood for young people with autistic spectrum conditions
Beresford, B. A., Moran, N. E., Sloper, T., Mitchell, W. A., Cusworth, L. S., Weston, K. H., Spiers, G. F. & Beecham, J.
1/11/09 → 30/04/12
Project: Other project › Miscellaneous project

Cite this

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title = "Choice and caring: the experiences of parents supporting young people with Autistic Spectrum Conditions as they move into adulthood",

abstract = "This paper reports findings about parents' experiences of caring for young people with Autistic Spectrum Conditions (ASCs) moving into adulthood. In-depth interviews were conducted with 38 parents of young people (15-21 years) with ASCs. Data were analysed thematically. In the perceived absence of service support, parents acted as 'care-coordinators' and 'life-supporters' for their child as they moved into adulthood. These roles came with little choice, emotional demands and personal restrictions. Being supported was important for parents, but preferences differed regarding what this should look like. Implications for policy are discussed.",

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Choice and caring: the experiences of parents supporting young people with Autistic Spectrum Conditions as they move into adulthood

Abstract

Bibliographical note

Keywords

Access to Document

Projects

Transition to adult services and adulthood for young people with autistic spectrum conditions

Cite this