Choice and change: how disabled young people with degenerative conditions and their parents make choices about care and services

Research output: Other contribution



Publication details

DatePublished - 2011
PublisherSocial Policy Research Unit
Number of pages6
Place of PublicationUniversity of York, York
Original languageEnglish

Publication series

NameResearch Works


Disabled young people with degenerative conditions and their parents face many service-related decisions. Previous research has typically focused on professionals' work with these families during decision-making situations. This study shifted the focus to look at the realities of choice-making processes within families, exploring the respective roles and experiences of young people and their parents.

    Research areas

  • ill/disabled children, funding issues, social care services issues, family


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