Developing a Decision Support Tool for Older People Who Pay for Social Care

Lyndsay Margaret Lindley; Maxine Watkins; Dawn Dowding; Louise Overton; Alannah Elizabeth Friend; Mark Robson Wilberforce; Yvonne Frances Birks

doi:10.31389/jltc.406

Developing a Decision Support Tool for Older People Who Pay for Social Care

Lyndsay Margaret Lindley^*, Maxine Watkins, Dawn Dowding, Louise Overton, Alannah Elizabeth Friend, Mark Robson Wilberforce, Yvonne Frances Birks

^*Corresponding author for this work

Research output: Contribution to journal › Article › peer-review

Abstract

Making informed decisions about social care in later life can be challenging and emotional, particularly for self-funders who organise and pay for care. The self-funding population in England is estimated at over 250,000, most of whom are older citizens who seldom receive statutory support to help them navigate a complex system. Decision aids can guide complex decision making by bringing together information and associated risks and benefits. This project aimed to create such a resource to support self-funders in navigating social care planning and funding. A prototype decision aid, Care Confidence, was co-designed with involvement of self-funders, carers and professionals, including care providers, information and advice services, later life advisers and others whom self-funders approach for information. The methods, adapted from design of patient decision aids in clinical settings, involved scoping and consultation, development workshops, and iterative testing and modification. This paper discusses the application of these methods in relation to the striking complexities of decision making in social care, particularly for self-funders. The resulting digital decision aid provides information on care options and funding strategies, as well as generating a user-centred action plan that empowers self-funders and their supporters to make confident, informed decisions about care. The development of this unique decision aid contributes to improving the evidence-informed support available to self-funders in England. In relation to accessibility, Care Confidence would benefit from further research to address language and digital exclusion of self-funders and scope to implement the resource in adult social care and third sector providers.

Original language	English
Journal	Journal of Long-Term Care
DOIs	https://doi.org/10.31389/jltc.406
Publication status	Published - 2025

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10.31389/jltc.406

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@article{d65da02981324556bf253e7daaff3903,

title = "Developing a Decision Support Tool for Older People Who Pay for Social Care",

abstract = "Making informed decisions about social care in later life can be challenging and emotional, particularly for self-funders who organise and pay for care. The self-funding population in England is estimated at over 250,000, most of whom are older citizens who seldom receive statutory support to help them navigate a complex system. Decision aids can guide complex decision making by bringing together information and associated risks and benefits. This project aimed to create such a resource to support self-funders in navigating social care planning and funding. A prototype decision aid, Care Confidence, was co-designed with involvement of self-funders, carers and professionals, including care providers, information and advice services, later life advisers and others whom self-funders approach for information. The methods, adapted from design of patient decision aids in clinical settings, involved scoping and consultation, development workshops, and iterative testing and modification. This paper discusses the application of these methods in relation to the striking complexities of decision making in social care, particularly for self-funders. The resulting digital decision aid provides information on care options and funding strategies, as well as generating a user-centred action plan that empowers self-funders and their supporters to make confident, informed decisions about care. The development of this unique decision aid contributes to improving the evidence-informed support available to self-funders in England. In relation to accessibility, Care Confidence would benefit from further research to address language and digital exclusion of self-funders and scope to implement the resource in adult social care and third sector providers. ",

author = "Lindley, {Lyndsay Margaret} and Maxine Watkins and Dawn Dowding and Louise Overton and Friend, {Alannah Elizabeth} and Wilberforce, {Mark Robson} and Birks, {Yvonne Frances}",

year = "2025",

doi = "10.31389/jltc.406",

language = "English",

journal = "Journal of Long-Term Care",

issn = "2516-9122",

publisher = "LSE Press",

}

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AU - Lindley, Lyndsay Margaret

AU - Watkins, Maxine

AU - Dowding, Dawn

AU - Overton, Louise

AU - Friend, Alannah Elizabeth

AU - Wilberforce, Mark Robson

AU - Birks, Yvonne Frances

PY - 2025

Y1 - 2025

N2 - Making informed decisions about social care in later life can be challenging and emotional, particularly for self-funders who organise and pay for care. The self-funding population in England is estimated at over 250,000, most of whom are older citizens who seldom receive statutory support to help them navigate a complex system. Decision aids can guide complex decision making by bringing together information and associated risks and benefits. This project aimed to create such a resource to support self-funders in navigating social care planning and funding. A prototype decision aid, Care Confidence, was co-designed with involvement of self-funders, carers and professionals, including care providers, information and advice services, later life advisers and others whom self-funders approach for information. The methods, adapted from design of patient decision aids in clinical settings, involved scoping and consultation, development workshops, and iterative testing and modification. This paper discusses the application of these methods in relation to the striking complexities of decision making in social care, particularly for self-funders. The resulting digital decision aid provides information on care options and funding strategies, as well as generating a user-centred action plan that empowers self-funders and their supporters to make confident, informed decisions about care. The development of this unique decision aid contributes to improving the evidence-informed support available to self-funders in England. In relation to accessibility, Care Confidence would benefit from further research to address language and digital exclusion of self-funders and scope to implement the resource in adult social care and third sector providers.

AB - Making informed decisions about social care in later life can be challenging and emotional, particularly for self-funders who organise and pay for care. The self-funding population in England is estimated at over 250,000, most of whom are older citizens who seldom receive statutory support to help them navigate a complex system. Decision aids can guide complex decision making by bringing together information and associated risks and benefits. This project aimed to create such a resource to support self-funders in navigating social care planning and funding. A prototype decision aid, Care Confidence, was co-designed with involvement of self-funders, carers and professionals, including care providers, information and advice services, later life advisers and others whom self-funders approach for information. The methods, adapted from design of patient decision aids in clinical settings, involved scoping and consultation, development workshops, and iterative testing and modification. This paper discusses the application of these methods in relation to the striking complexities of decision making in social care, particularly for self-funders. The resulting digital decision aid provides information on care options and funding strategies, as well as generating a user-centred action plan that empowers self-funders and their supporters to make confident, informed decisions about care. The development of this unique decision aid contributes to improving the evidence-informed support available to self-funders in England. In relation to accessibility, Care Confidence would benefit from further research to address language and digital exclusion of self-funders and scope to implement the resource in adult social care and third sector providers.

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