'My brother likes meeting new people, but don’t ask him any direct questions': involving adults with autism plus learning disability in a qualitative research project

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Adult siblings of people with autism and a learning disability have hitherto been largely overlooked by research, policy and practice in the UK. As part of a qualitative study focussing on adult siblings, we met twelve people with autism plus severe learning disability with their brother or sister. Individually tailored resources were used to make the meeting accessible and positive. Sibling involvement was essential to the participation, and inclusion of adults with autism plus learning disability strengthened the research findings, making them more valid and more relevant to policy and practice. This article describes our experiences of facilitating this involvement, the methods used and understandings gained, with the aim of encouraging practitioners and researchers to do likewise.
Original languageEnglish
Pages (from-to)292-300
Number of pages9
JournalBritish Journal of Learning Disabilities
Issue number4
Early online date20 Sept 2013
Publication statusPublished - Dec 2014


  • autism
  • learning difficulties

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