My Life: Growing up and living with Ataxia-Telangiectasia: young people's and young adults' experiences

Research output: Book/ReportCommissioned report


The A-T Society was seeking to understand more about the lives of young people, their priorities and aspirations, and what got in the way of them living the lives that they want to live. The Society also wanted to know young people's views about the support and services it provided to young people with A-T and their families.The key purpose of the project was to hear and give a voice to, the experiences of young people with A-T. Their views and experiences are prioritised in this report.
Original languageEnglish
Place of PublicationYork
PublisherSocial Policy Research Unit, University of York
Commissioning bodyA-T Society
Number of pages38
ISBN (Print)978-1-907265-26-6
Publication statusPublished - 2013


  • young people
  • ill children and young people
  • young people's views
  • Young people with degenerative conditions
  • A-T
  • support services

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