Noma, The Neglected Disease - An Interdisciplinary Exploration of Its Realities, Burden, and Framing. Final Scientific Report

Ioana Cismas (Editor)

Research output: Book/ReportOther report


Noma is a gangrenous disease that predominantly affects small children living in extreme poverty. With an untreated mortality rate of up to 90%, noma leaves survivors with significant aesthetic and functional sequelae. This collaborative, interdisciplinary research project aimed to achieve greater understanding of noma across three dimensions: its epidemiology, the realities and lived experiences of individuals at risk of and survivors of noma, and the utility for advocacy of its framing as a neglected tropical disease (NTD) and human rights concern. The project findings provide clear evidence that noma meets the formal criteria to be included in the World Health Organization (WHO) list of NTDs. Such formal inclusion would be a first step towards systematic and assumed action to prevent, detect and treat noma and redress the human rights violations suffered by survivors.
Original languageEnglish
Number of pages11
Publication statusPublished - 2022

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