Noma, The Neglected Disease - An Interdisciplinary Exploration of Its Realities, Burden, and Framing. Final Scientific Report

Ioana Cismas

Noma, The Neglected Disease - An Interdisciplinary Exploration of Its Realities, Burden, and Framing. Final Scientific Report

York Law School

Research output: Book/Report › Other report

Abstract

Noma is a gangrenous disease that predominantly affects small children living in extreme poverty. With an untreated mortality rate of up to 90%, noma leaves survivors with significant aesthetic and functional sequelae. This collaborative, interdisciplinary research project aimed to achieve greater understanding of noma across three dimensions: its epidemiology, the realities and lived experiences of individuals at risk of and survivors of noma, and the utility for advocacy of its framing as a neglected tropical disease (NTD) and human rights concern. The project findings provide clear evidence that noma meets the formal criteria to be included in the World Health Organization (WHO) list of NTDs. Such formal inclusion would be a first step towards systematic and assumed action to prevent, detect and treat noma and redress the human rights violations suffered by survivors.

Original language	English
Number of pages	11
Publication status	Published - 2022

Access to Document

https://snis.ch/wp-content/uploads/2020/01/2019_Mpinga_Scientific_Report.pdfLicence: Unspecified

Noma, through the eyes of survivors and scientific evidence – Lifting the neglect from a neglected tropical disease
Ioana Cismas (Keynote/plenary speaker)
11 Jan 2023
Activity: Participating in or organising an event › Conference

Noma, The Neglected Disease. An Interdisciplinary Exploration of Its Realities, Burden and Framing
Cismas, I. (Principal investigator)
1/10/19 → 31/03/22
Project: Research project (funded) › Research

Cite this

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title = "Noma, The Neglected Disease - An Interdisciplinary Exploration of Its Realities, Burden, and Framing. Final Scientific Report",

abstract = "Noma is a gangrenous disease that predominantly affects small children living in extreme poverty. With an untreated mortality rate of up to 90%, noma leaves survivors with significant aesthetic and functional sequelae. This collaborative, interdisciplinary research project aimed to achieve greater understanding of noma across three dimensions: its epidemiology, the realities and lived experiences of individuals at risk of and survivors of noma, and the utility for advocacy of its framing as a neglected tropical disease (NTD) and human rights concern. The project findings provide clear evidence that noma meets the formal criteria to be included in the World Health Organization (WHO) list of NTDs. Such formal inclusion would be a first step towards systematic and assumed action to prevent, detect and treat noma and redress the human rights violations suffered by survivors.",

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AB - Noma is a gangrenous disease that predominantly affects small children living in extreme poverty. With an untreated mortality rate of up to 90%, noma leaves survivors with significant aesthetic and functional sequelae. This collaborative, interdisciplinary research project aimed to achieve greater understanding of noma across three dimensions: its epidemiology, the realities and lived experiences of individuals at risk of and survivors of noma, and the utility for advocacy of its framing as a neglected tropical disease (NTD) and human rights concern. The project findings provide clear evidence that noma meets the formal criteria to be included in the World Health Organization (WHO) list of NTDs. Such formal inclusion would be a first step towards systematic and assumed action to prevent, detect and treat noma and redress the human rights violations suffered by survivors.

M3 - Other report

BT - Noma, The Neglected Disease - An Interdisciplinary Exploration of Its Realities, Burden, and Framing. Final Scientific Report

ER -

Noma, The Neglected Disease - An Interdisciplinary Exploration of Its Realities, Burden, and Framing. Final Scientific Report

Abstract

Access to Document

Activities

Noma, through the eyes of survivors and scientific evidence – Lifting the neglect from a neglected tropical disease

Projects

Noma, The Neglected Disease. An Interdisciplinary Exploration of Its Realities, Burden and Framing

Cite this