Participation and partnerships in research: listening to the ideas and experiences of a parent-carer

S Lister, W Mitchell, P Sloper, K Roberts

Research output: Contribution to journalArticlepeer-review


Recent health care policy directives advocate partnerships between researchers and service users in setting the research agenda and conducting research. This paper seeks to explore the meaning and reality of user participation from the perspective of a parent-carer and his experiences of being involved in three recent research projects. Important issues, such as the need for practical and emotional support and respect for user partners, are discussed alongside key questions for participants, including, what's in it for me? Drawing these ideas together, the authors' highlight four broad issues and recommendations to inform and guide the further progress of participatory research within health and social care.
Original languageEnglish
Pages (from-to)159-166
Number of pages8
JournalInternational Journal of Social Research Methodology
Issue number2
Publication statusPublished - 2003


  • research methodologies
  • carers

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