Participation and partnerships in research: listening to the ideas and experiences of a parent-carer

S Lister; W Mitchell; P Sloper; K Roberts

Participation and partnerships in research: listening to the ideas and experiences of a parent-carer

S Lister, W Mitchell, P Sloper, K Roberts

Research output: Contribution to journal › Article › peer-review

Abstract

Recent health care policy directives advocate partnerships between researchers and service users in setting the research agenda and conducting research. This paper seeks to explore the meaning and reality of user participation from the perspective of a parent-carer and his experiences of being involved in three recent research projects. Important issues, such as the need for practical and emotional support and respect for user partners, are discussed alongside key questions for participants, including, what's in it for me? Drawing these ideas together, the authors' highlight four broad issues and recommendations to inform and guide the further progress of participatory research within health and social care.

Original language	English
Pages (from-to)	159-166
Number of pages	8
Journal	International Journal of Social Research Methodology
Volume	6
Issue number	2
Publication status	Published - 2003

Keywords

research methodologies
carers

Cite this

@article{12d4dc7f58bf4a0189a60d2d067012b8,

title = "Participation and partnerships in research: listening to the ideas and experiences of a parent-carer",

abstract = "Recent health care policy directives advocate partnerships between researchers and service users in setting the research agenda and conducting research. This paper seeks to explore the meaning and reality of user participation from the perspective of a parent-carer and his experiences of being involved in three recent research projects. Important issues, such as the need for practical and emotional support and respect for user partners, are discussed alongside key questions for participants, including, what's in it for me? Drawing these ideas together, the authors' highlight four broad issues and recommendations to inform and guide the further progress of participatory research within health and social care. ",

keywords = "research methodologies, carers",

author = "S Lister and W Mitchell and P Sloper and K Roberts",

year = "2003",

language = "English",

volume = "6",

pages = "159--166",

journal = "International Journal of Social Research Methodology",

publisher = "Taylor & Francis",

number = "2",

}

TY - JOUR

T1 - Participation and partnerships in research: listening to the ideas and experiences of a parent-carer

AU - Lister, S

AU - Mitchell, W

AU - Sloper, P

AU - Roberts, K

PY - 2003

Y1 - 2003

N2 - Recent health care policy directives advocate partnerships between researchers and service users in setting the research agenda and conducting research. This paper seeks to explore the meaning and reality of user participation from the perspective of a parent-carer and his experiences of being involved in three recent research projects. Important issues, such as the need for practical and emotional support and respect for user partners, are discussed alongside key questions for participants, including, what's in it for me? Drawing these ideas together, the authors' highlight four broad issues and recommendations to inform and guide the further progress of participatory research within health and social care.

AB - Recent health care policy directives advocate partnerships between researchers and service users in setting the research agenda and conducting research. This paper seeks to explore the meaning and reality of user participation from the perspective of a parent-carer and his experiences of being involved in three recent research projects. Important issues, such as the need for practical and emotional support and respect for user partners, are discussed alongside key questions for participants, including, what's in it for me? Drawing these ideas together, the authors' highlight four broad issues and recommendations to inform and guide the further progress of participatory research within health and social care.

KW - research methodologies

KW - carers

M3 - Article

VL - 6

SP - 159

EP - 166

JO - International Journal of Social Research Methodology

JF - International Journal of Social Research Methodology

IS - 2

ER -