By the same authors

From the same journal

Physiotherapy for vegetative and minimally conscious state patients: family perceptions and experiences

Research output: Contribution to journalArticlepeer-review

Standard

Physiotherapy for vegetative and minimally conscious state patients : family perceptions and experiences. / Kitzinger, Celia; Julie, Latchem; Jenny, Kitzinger .

In: Disability and rehabilitation, 2015.

Research output: Contribution to journalArticlepeer-review

Harvard

Kitzinger, C, Julie, L & Jenny, K 2015, 'Physiotherapy for vegetative and minimally conscious state patients: family perceptions and experiences', Disability and rehabilitation. https://doi.org/10.3109/09638288.2015.1005759

APA

Kitzinger, C., Julie, L., & Jenny, K. (2015). Physiotherapy for vegetative and minimally conscious state patients: family perceptions and experiences. Disability and rehabilitation. https://doi.org/10.3109/09638288.2015.1005759

Vancouver

Kitzinger C, Julie L, Jenny K. Physiotherapy for vegetative and minimally conscious state patients: family perceptions and experiences. Disability and rehabilitation. 2015. https://doi.org/10.3109/09638288.2015.1005759

Author

Kitzinger, Celia ; Julie, Latchem ; Jenny, Kitzinger . / Physiotherapy for vegetative and minimally conscious state patients : family perceptions and experiences. In: Disability and rehabilitation. 2015.

Bibtex - Download

@article{3431919fa5044bcaa5ffdd39b742a602,
title = "Physiotherapy for vegetative and minimally conscious state patients: family perceptions and experiences",
abstract = "Purpose: To examine family perceptions of physiotherapy provided to relatives in vegetative or minimally conscious states. Method: Secondary thematic analysis of 65 in-depth narrative interviews with family members of people in vegetative or minimally conscious states. Results: Families place great significance on physiotherapy in relation to six dimensions: {\textquoteleft}{\textquoteleft}Caring for the person{\textquoteright}{\textquoteright}, {\textquoteleft}{\textquoteleft}Maximising comfort{\textquoteright}{\textquoteright}, {\textquoteleft}{\textquoteleft}Helping maintain health/life{\textquoteright}{\textquoteright}, {\textquoteleft}{\textquoteleft}Facilitating progress{\textquoteright}{\textquoteright}, {\textquoteleft}{\textquoteleft}Identifying or stimulating consciousness{\textquoteright}{\textquoteright} and {\textquoteleft}{\textquoteleft}Indicating potential for meaningful recovery{\textquoteright}{\textquoteright}. They can have high expectations of what physiotherapy may deliver but also, at times, express concerns about physiotherapy{\textquoteright}s potential to cause pain or distress, or even constitute a form of torture if they believe there is no hope for {\textquoteleft}{\textquoteleft}meaningful{\textquoteright}{\textquoteright} recovery. Conclusion: Physiotherapists can make an important contribution to supporting this patient group and their families but it is vital to recognise that family understandings of physiotherapy may differ significantly from those of physiotherapists. Both the delivery and the withdrawal of physiotherapy is highly symbolic and can convey (inadvertent) messages to people about their relative{\textquoteright}s current and future state. A genuine two-way dialogue between practitioners and families about the aims of physiotherapeutic interventions, potential outcomes and patients{\textquoteright} best interests is critical to providing a good service and establishing positive relationships and appropriate treatment.",
keywords = "disorders of consciousness, family, physiotherapy, vegetative",
author = "Celia Kitzinger and Latchem Julie and Kitzinger Jenny",
year = "2015",
doi = "10.3109/09638288.2015.1005759",
language = "English",
journal = "Disability and rehabilitation",
issn = "0963-8288",
publisher = "Informa Healthcare",

}

RIS (suitable for import to EndNote) - Download

TY - JOUR

T1 - Physiotherapy for vegetative and minimally conscious state patients

T2 - family perceptions and experiences

AU - Kitzinger, Celia

AU - Julie, Latchem

AU - Jenny, Kitzinger

PY - 2015

Y1 - 2015

N2 - Purpose: To examine family perceptions of physiotherapy provided to relatives in vegetative or minimally conscious states. Method: Secondary thematic analysis of 65 in-depth narrative interviews with family members of people in vegetative or minimally conscious states. Results: Families place great significance on physiotherapy in relation to six dimensions: ‘‘Caring for the person’’, ‘‘Maximising comfort’’, ‘‘Helping maintain health/life’’, ‘‘Facilitating progress’’, ‘‘Identifying or stimulating consciousness’’ and ‘‘Indicating potential for meaningful recovery’’. They can have high expectations of what physiotherapy may deliver but also, at times, express concerns about physiotherapy’s potential to cause pain or distress, or even constitute a form of torture if they believe there is no hope for ‘‘meaningful’’ recovery. Conclusion: Physiotherapists can make an important contribution to supporting this patient group and their families but it is vital to recognise that family understandings of physiotherapy may differ significantly from those of physiotherapists. Both the delivery and the withdrawal of physiotherapy is highly symbolic and can convey (inadvertent) messages to people about their relative’s current and future state. A genuine two-way dialogue between practitioners and families about the aims of physiotherapeutic interventions, potential outcomes and patients’ best interests is critical to providing a good service and establishing positive relationships and appropriate treatment.

AB - Purpose: To examine family perceptions of physiotherapy provided to relatives in vegetative or minimally conscious states. Method: Secondary thematic analysis of 65 in-depth narrative interviews with family members of people in vegetative or minimally conscious states. Results: Families place great significance on physiotherapy in relation to six dimensions: ‘‘Caring for the person’’, ‘‘Maximising comfort’’, ‘‘Helping maintain health/life’’, ‘‘Facilitating progress’’, ‘‘Identifying or stimulating consciousness’’ and ‘‘Indicating potential for meaningful recovery’’. They can have high expectations of what physiotherapy may deliver but also, at times, express concerns about physiotherapy’s potential to cause pain or distress, or even constitute a form of torture if they believe there is no hope for ‘‘meaningful’’ recovery. Conclusion: Physiotherapists can make an important contribution to supporting this patient group and their families but it is vital to recognise that family understandings of physiotherapy may differ significantly from those of physiotherapists. Both the delivery and the withdrawal of physiotherapy is highly symbolic and can convey (inadvertent) messages to people about their relative’s current and future state. A genuine two-way dialogue between practitioners and families about the aims of physiotherapeutic interventions, potential outcomes and patients’ best interests is critical to providing a good service and establishing positive relationships and appropriate treatment.

KW - disorders of consciousness, family, physiotherapy, vegetative

U2 - 10.3109/09638288.2015.1005759

DO - 10.3109/09638288.2015.1005759

M3 - Article

JO - Disability and rehabilitation

JF - Disability and rehabilitation

SN - 0963-8288

ER -