Psychometric validation of the needs assessment tool: progressive disease in interstitial lung disease

Miriam J. Johnson; Armita Jamali; Joy Ross; Caroline Fairhurst; Jason W Boland; Carla Reigada; Simon Paul Hart; Gunn Grande; David C Currow; Athol U Wells; Sabrina Bajwah; Thanos Papadopoulos; J Martin Bland; Janelle Yorke

doi:10.1136/thoraxjnl-2017-210911

Psychometric validation of the needs assessment tool: progressive disease in interstitial lung disease

Miriam J. Johnson, Armita Jamali, Joy Ross, Caroline Fairhurst, Jason W Boland, Carla Reigada, Simon Paul Hart, Gunn Grande, David C Currow, Athol U Wells, Sabrina Bajwah, Thanos Papadopoulos, J Martin Bland, Janelle Yorke

Health Sciences

Research output: Contribution to journal › Article › peer-review

Abstract

ABSTRACT The inter-rater/test–retest reliability and construct validity of a palliative care needs assessment tool in interstitial lung disease (NAT:PD-ILD) were tested using NAT:PDILD- guided video-recorded consultations, and NAT:PD-ILD-guided consultations, and patient and carer-report outcomes (St George’s Respiratory Questionnaire (SGRQ)-ILD, Carer Strain Index (CSI)/Carer Support Needs Assessment Tool (CSNAT)). 11/16 items reached at least fair inter-rater agreement; 5 items reached at least moderate test–retest agreement. 4/6 patient constructs demonstrated agreement with SGRQ-I scores (Kendall’s tau-b, 0.24–20.36; P<0.05). 4/7 carer constructs agreed with the CSI/CSNAT items (kappa, 0.23–20.53). The NAT:PD-ILD is reliable and valid. Clinical effectiveness and implementation are to be evaluated.

Original language	English
Pages (from-to)	2017-2019
Number of pages	3
Journal	Thorax
Volume	73
Issue number	9
Early online date	17 Nov 2017
DOIs	https://doi.org/10.1136/thoraxjnl-2017-210911
Publication status	Published - Sept 2018

Bibliographical note

Copyright Article author (or their employer) 2017.

Keywords

Journal Article

Access to Document

10.1136/thoraxjnl-2017-210911

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Copyright Article author (or their employer) 2017.
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Cite this

Johnson, M. J., Jamali, A., Ross, J., Fairhurst, C., Boland, J. W., Reigada, C., Hart, S. P., Grande, G., Currow, D. C., Wells, A. U., Bajwah, S., Papadopoulos, T., Bland, J. M., & Yorke, J. (2018). Psychometric validation of the needs assessment tool: progressive disease in interstitial lung disease. Thorax, 73(9), 2017-2019. https://doi.org/10.1136/thoraxjnl-2017-210911

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title = "Psychometric validation of the needs assessment tool: progressive disease in interstitial lung disease",

abstract = "ABSTRACT The inter-rater/test–retest reliability and construct validity of a palliative care needs assessment tool in interstitial lung disease (NAT:PD-ILD) were tested using NAT:PDILD- guided video-recorded consultations, and NAT:PD-ILD-guided consultations, and patient and carer-report outcomes (St George{\textquoteright}s Respiratory Questionnaire (SGRQ)-ILD, Carer Strain Index (CSI)/Carer Support Needs Assessment Tool (CSNAT)). 11/16 items reached at least fair inter-rater agreement; 5 items reached at least moderate test–retest agreement. 4/6 patient constructs demonstrated agreement with SGRQ-I scores (Kendall{\textquoteright}s tau-b, 0.24–20.36; P<0.05). 4/7 carer constructs agreed with the CSI/CSNAT items (kappa, 0.23–20.53). The NAT:PD-ILD is reliable and valid. Clinical effectiveness and implementation are to be evaluated.",

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doi = "10.1136/thoraxjnl-2017-210911",

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T1 - Psychometric validation of the needs assessment tool

T2 - progressive disease in interstitial lung disease

AU - Johnson, Miriam J.

AU - Jamali, Armita

AU - Ross, Joy

AU - Fairhurst, Caroline

AU - Boland, Jason W

AU - Reigada, Carla

AU - Hart, Simon Paul

AU - Grande, Gunn

AU - Currow, David C

AU - Wells, Athol U

AU - Bajwah, Sabrina

AU - Papadopoulos, Thanos

AU - Bland, J Martin

AU - Yorke, Janelle

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N2 - ABSTRACT The inter-rater/test–retest reliability and construct validity of a palliative care needs assessment tool in interstitial lung disease (NAT:PD-ILD) were tested using NAT:PDILD- guided video-recorded consultations, and NAT:PD-ILD-guided consultations, and patient and carer-report outcomes (St George’s Respiratory Questionnaire (SGRQ)-ILD, Carer Strain Index (CSI)/Carer Support Needs Assessment Tool (CSNAT)). 11/16 items reached at least fair inter-rater agreement; 5 items reached at least moderate test–retest agreement. 4/6 patient constructs demonstrated agreement with SGRQ-I scores (Kendall’s tau-b, 0.24–20.36; P<0.05). 4/7 carer constructs agreed with the CSI/CSNAT items (kappa, 0.23–20.53). The NAT:PD-ILD is reliable and valid. Clinical effectiveness and implementation are to be evaluated.

AB - ABSTRACT The inter-rater/test–retest reliability and construct validity of a palliative care needs assessment tool in interstitial lung disease (NAT:PD-ILD) were tested using NAT:PDILD- guided video-recorded consultations, and NAT:PD-ILD-guided consultations, and patient and carer-report outcomes (St George’s Respiratory Questionnaire (SGRQ)-ILD, Carer Strain Index (CSI)/Carer Support Needs Assessment Tool (CSNAT)). 11/16 items reached at least fair inter-rater agreement; 5 items reached at least moderate test–retest agreement. 4/6 patient constructs demonstrated agreement with SGRQ-I scores (Kendall’s tau-b, 0.24–20.36; P<0.05). 4/7 carer constructs agreed with the CSI/CSNAT items (kappa, 0.23–20.53). The NAT:PD-ILD is reliable and valid. Clinical effectiveness and implementation are to be evaluated.

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DO - 10.1136/thoraxjnl-2017-210911

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