Securing a future for responsible neuromodulation in children: The importance of maintaining a broad clinical gaze

John Grant Gardner

doi:10.1016/j.ejpn.2016.04.019

Securing a future for responsible neuromodulation in children: The importance of maintaining a broad clinical gaze

John Grant Gardner

Department of Sociology

Research output: Contribution to journal › Article › peer-review

Abstract

This perspective paper provides an overview of several key tensions and challenges within the social context of neuromodulation, and it suggests a means of securing the future of paediatric neuromodulation in light of these. Tensions and challenges relate to: the considerable clinical and economic need for new therapies to manage neurological diseases; significant commercial involvement in the field; funding pressures; public perceptions (particularly unrealistic expectations); and the emerging Responsible Research and Innovation initiative. This paper will argue that managing these challenges and tensions requires that clinicians working within the field adopt what could be called a broad clinical gaze. This paper will define the broad clinical gaze, and it will propose several ways in which a broad clinical gaze can be – and indeed is being - operationalised in recent advances in neuromodulation in children. These include the use of multidisciplinary and interdisciplinary clinical team structures, the adoption of clinical assessment tools that capture day-to-day functionality, and the use of patient registries. By adopting a broad clinical gaze, clinicians and investigators can ensure that the field as a whole can responsibly and ethically deliver on its significant clinical potential.

Original language	English
Pages (from-to)	49-55
Number of pages	7
Journal	European Journal of Paediatric Neurology
Volume	21
Issue number	1
Early online date	23 May 2016
DOIs	https://doi.org/10.1016/j.ejpn.2016.04.019
Publication status	E-pub ahead of print - 23 May 2016

Bibliographical note

© 2016 The Author(s). This is an author-produced version of the published paper. Uploaded in accordance with the publisher’s self-archiving policy. Further copying may not be permitted; contact the publisher for details. Embargo period : 12 months.

Access to Document

10.1016/j.ejpn.2016.04.019

PIIS1090379816300290
© 2016 The Author(s).
Final published version, 284 KBLicence: CC BY

Cite this

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title = "Securing a future for responsible neuromodulation in children: The importance of maintaining a broad clinical gaze",

abstract = "This perspective paper provides an overview of several key tensions and challenges within the social context of neuromodulation, and it suggests a means of securing the future of paediatric neuromodulation in light of these. Tensions and challenges relate to: the considerable clinical and economic need for new therapies to manage neurological diseases; significant commercial involvement in the field; funding pressures; public perceptions (particularly unrealistic expectations); and the emerging Responsible Research and Innovation initiative. This paper will argue that managing these challenges and tensions requires that clinicians working within the field adopt what could be called a broad clinical gaze. This paper will define the broad clinical gaze, and it will propose several ways in which a broad clinical gaze can be – and indeed is being - operationalised in recent advances in neuromodulation in children. These include the use of multidisciplinary and interdisciplinary clinical team structures, the adoption of clinical assessment tools that capture day-to-day functionality, and the use of patient registries. By adopting a broad clinical gaze, clinicians and investigators can ensure that the field as a whole can responsibly and ethically deliver on its significant clinical potential.",

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