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The effectiveness of bereavement support interventions for parents of infants and children who die: A systematic review

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The effectiveness of bereavement support interventions for parents of infants and children who die: A systematic review. / Ainscough, Thomas Stephen; Fraser, Lorna Katharine; Taylor, Johanna; Beresford, Bryony Anne; Booth, Alison Margaret.

In: BMJ Supportive & Palliative Care, 03.10.2019.

Research output: Contribution to journalArticle

Harvard

Ainscough, TS, Fraser, LK, Taylor, J, Beresford, BA & Booth, AM 2019, 'The effectiveness of bereavement support interventions for parents of infants and children who die: A systematic review', BMJ Supportive & Palliative Care. https://doi.org/10.1136/bmjspcare-2019-001823

APA

Ainscough, T. S., Fraser, L. K., Taylor, J., Beresford, B. A., & Booth, A. M. (2019). The effectiveness of bereavement support interventions for parents of infants and children who die: A systematic review. BMJ Supportive & Palliative Care. https://doi.org/10.1136/bmjspcare-2019-001823

Vancouver

Ainscough TS, Fraser LK, Taylor J, Beresford BA, Booth AM. The effectiveness of bereavement support interventions for parents of infants and children who die: A systematic review. BMJ Supportive & Palliative Care. 2019 Oct 3. https://doi.org/10.1136/bmjspcare-2019-001823

Author

Ainscough, Thomas Stephen ; Fraser, Lorna Katharine ; Taylor, Johanna ; Beresford, Bryony Anne ; Booth, Alison Margaret. / The effectiveness of bereavement support interventions for parents of infants and children who die: A systematic review. In: BMJ Supportive & Palliative Care. 2019.

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@article{2a2572f8211d424c8743a08c6ed77b2e,
title = "The effectiveness of bereavement support interventions for parents of infants and children who die: A systematic review",
abstract = "Objectives This systematic review aims to assess the effectiveness of bereavement support interventions (BSIs) for parents of an infant or a child who has died from a medical condition or in unforeseen circumstances.Methods A systematic search of MEDLINE, PsycINFO, Embase and CINAHL (1980 to January 2018) was performed to identify studies investigating BSIs for the parents of children who died between the ages of 24 weeks gestation and 30 years. Due to significant clinical and methodological heterogeneity between studies, a narrative synthesis was performed.Results The database searches returned 24 550 records, with a further 6 identified through other sources. Of these, eight studies, reported in nine papers, met the inclusion criteria. Most studies were conducted in the USA (n=5) and in perinatal/neonatal deaths (n=6). Five of the included studies were randomised controlled trials and three were non-randomised comparative studies. Interventions were delivered to groups, individuals or families. Outcomes of interest were grief, mental health, physical health and ‘others’. There were major concerns over the quality of study methods and reporting. Only three of the nine studies reported a significant difference between experimental and control arm participants in any outcomes, despite a total of 23 outcomes being measured.Conclusions Poor methodology and reporting of the few studies which have assessed BSIs for parents limit any conclusions on their effectiveness. Agreement on core outcomes and more robust study methodology are required in this neglected area of research.",
author = "Ainscough, {Thomas Stephen} and Fraser, {Lorna Katharine} and Johanna Taylor and Beresford, {Bryony Anne} and Booth, {Alison Margaret}",
note = "{\circledC} Author(s) (or their employer(s)) 2019. No commercial re-use. See rights and permissions. Published by BMJ.",
year = "2019",
month = "10",
day = "3",
doi = "10.1136/bmjspcare-2019-001823",
language = "English",
journal = "BMJ Supportive & Palliative Care",
issn = "2045-435X",
publisher = "BMJ Publishing Group",

}

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TY - JOUR

T1 - The effectiveness of bereavement support interventions for parents of infants and children who die: A systematic review

AU - Ainscough, Thomas Stephen

AU - Fraser, Lorna Katharine

AU - Taylor, Johanna

AU - Beresford, Bryony Anne

AU - Booth, Alison Margaret

N1 - © Author(s) (or their employer(s)) 2019. No commercial re-use. See rights and permissions. Published by BMJ.

PY - 2019/10/3

Y1 - 2019/10/3

N2 - Objectives This systematic review aims to assess the effectiveness of bereavement support interventions (BSIs) for parents of an infant or a child who has died from a medical condition or in unforeseen circumstances.Methods A systematic search of MEDLINE, PsycINFO, Embase and CINAHL (1980 to January 2018) was performed to identify studies investigating BSIs for the parents of children who died between the ages of 24 weeks gestation and 30 years. Due to significant clinical and methodological heterogeneity between studies, a narrative synthesis was performed.Results The database searches returned 24 550 records, with a further 6 identified through other sources. Of these, eight studies, reported in nine papers, met the inclusion criteria. Most studies were conducted in the USA (n=5) and in perinatal/neonatal deaths (n=6). Five of the included studies were randomised controlled trials and three were non-randomised comparative studies. Interventions were delivered to groups, individuals or families. Outcomes of interest were grief, mental health, physical health and ‘others’. There were major concerns over the quality of study methods and reporting. Only three of the nine studies reported a significant difference between experimental and control arm participants in any outcomes, despite a total of 23 outcomes being measured.Conclusions Poor methodology and reporting of the few studies which have assessed BSIs for parents limit any conclusions on their effectiveness. Agreement on core outcomes and more robust study methodology are required in this neglected area of research.

AB - Objectives This systematic review aims to assess the effectiveness of bereavement support interventions (BSIs) for parents of an infant or a child who has died from a medical condition or in unforeseen circumstances.Methods A systematic search of MEDLINE, PsycINFO, Embase and CINAHL (1980 to January 2018) was performed to identify studies investigating BSIs for the parents of children who died between the ages of 24 weeks gestation and 30 years. Due to significant clinical and methodological heterogeneity between studies, a narrative synthesis was performed.Results The database searches returned 24 550 records, with a further 6 identified through other sources. Of these, eight studies, reported in nine papers, met the inclusion criteria. Most studies were conducted in the USA (n=5) and in perinatal/neonatal deaths (n=6). Five of the included studies were randomised controlled trials and three were non-randomised comparative studies. Interventions were delivered to groups, individuals or families. Outcomes of interest were grief, mental health, physical health and ‘others’. There were major concerns over the quality of study methods and reporting. Only three of the nine studies reported a significant difference between experimental and control arm participants in any outcomes, despite a total of 23 outcomes being measured.Conclusions Poor methodology and reporting of the few studies which have assessed BSIs for parents limit any conclusions on their effectiveness. Agreement on core outcomes and more robust study methodology are required in this neglected area of research.

U2 - 10.1136/bmjspcare-2019-001823

DO - 10.1136/bmjspcare-2019-001823

M3 - Article

JO - BMJ Supportive & Palliative Care

JF - BMJ Supportive & Palliative Care

SN - 2045-435X

ER -