The support needs of parents with inflammatory bowel disease and their children

S Mukherjee; P Sloper; B Lewin

The support needs of parents with inflammatory bowel disease and their children

Research output: Other contribution

Abstract

In the UK there is growing interest in the support needs of disabled parents and their children, with a number of shortcomings in service provision identified. However, little attention has been paid to the experiences of families when a parent has a chronic illness. Inflammatory bowel disease (IBD) is a chronic illness with no known cure, though effective treatments are available. The two main forms of IBD, ulcerative colitis and Crohn's disease, can cause a range of debilitating symptoms, including some which are associated with considerable social stigma. This study investigated the support needed by families in this situation.

Original language	English
Publisher	Social Policy Research Unit, University of York
Place of Publication	University of York, York
Publication status	Published - 2005

Publication series

Name	Research Works
Volume	2005-03

Keywords

ill/disabled adults
family
child well-being

Access to Document

http://www.york.ac.uk/inst/spru/pubs/rworks/june2005.pdf

Cite this

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abstract = "In the UK there is growing interest in the support needs of disabled parents and their children, with a number of shortcomings in service provision identified. However, little attention has been paid to the experiences of families when a parent has a chronic illness. Inflammatory bowel disease (IBD) is a chronic illness with no known cure, though effective treatments are available. The two main forms of IBD, ulcerative colitis and Crohn's disease, can cause a range of debilitating symptoms, including some which are associated with considerable social stigma. This study investigated the support needed by families in this situation.",

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AB - In the UK there is growing interest in the support needs of disabled parents and their children, with a number of shortcomings in service provision identified. However, little attention has been paid to the experiences of families when a parent has a chronic illness. Inflammatory bowel disease (IBD) is a chronic illness with no known cure, though effective treatments are available. The two main forms of IBD, ulcerative colitis and Crohn's disease, can cause a range of debilitating symptoms, including some which are associated with considerable social stigma. This study investigated the support needed by families in this situation.

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