The support needs of parents with inflammatory bowel disease and their children

Research output: Other contribution



Publication details

DatePublished - 2005
PublisherSocial Policy Research Unit
Place of PublicationUniversity of York, York
Original languageEnglish

Publication series

NameResearch Works


In the UK there is growing interest in the support needs of disabled parents and their children, with a number of shortcomings in service provision identified. However, little attention has been paid to the experiences of families when a parent has a chronic illness. Inflammatory bowel disease (IBD) is a chronic illness with no known cure, though effective treatments are available. The two main forms of IBD, ulcerative colitis and Crohn's disease, can cause a range of debilitating symptoms, including some which are associated with considerable social stigma. This study investigated the support needed by families in this situation.

    Research areas

  • ill/disabled adults, family, child well-being

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