By the same authors

From the same journal

What impact does written information about fatigue have on patients with autoimmune rheumatic diseases? Findings from a qualitative study

Research output: Contribution to journalArticle

Author(s)

  • Ruth Isla Hart
  • Wan-Fai Ng
  • Julia Newton
  • Kate Hackett
  • Richard Lee
  • Ben Thompson

Department/unit(s)

Publication details

JournalMusculoskeletal Care
DateAccepted/In press - 2016
DateE-pub ahead of print - 18 Nov 2016
DatePublished (current) - 18 Nov 2016
Number of pages8
Early online date18/11/16
Original languageEnglish

Abstract

Objectives

Although fatigue is a common symptom for people with rheumatic diseases, limited support is available. This study explored the impact of written information about fatigue, focusing on a booklet, Fatigue and arthritis.
Methods

Thirteen patients with rheumatic disease and fatigue were recruited purposively from a rheumatology outpatient service. They were interviewed before and after receiving the fatigue booklet. Two patients, plus six professionals with relevant interests, participated in a focus group. Transcripts were analysed thematically and a descriptive summary was produced.
Results

Interviewees consistently reported that fatigue made life more challenging, and none had previously received any support to manage it. Reflecting on the booklet, most said that it had made a difference to how they thought about fatigue, and that this had been valuable. Around half also said that it had affected, or would affect, how they managed fatigue. No one reported any impact on fatigue itself. Comments from interviewees and focus group members alike suggested that the research process may have contributed to the changes in thought and behaviour reported. Its key contributions appear to have been: clarifying the booklet's relevance; prompting reflection on current management; and introducing accountability.
Conclusions

This study indicated that written information can make a difference to how people think about fatigue and may also prompt behaviour change. However, context appeared to be important: it seems likely that the research process played a part and that the impact of the booklet may have been less if read in isolation. Aspects of the research appearing to facilitate impact could be integrated into routine care, providing a pragmatic (relatively low-cost) response to an unmet need.

Bibliographical note

© 2016 The Authors Musculoskeletal Care Published by John Wiley & Sons Ltd

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