By the same authors

From the same journal

What is different about living alone with cancer in older age? A qualitative study of experiences and preferences for care

Research output: Contribution to journalArticle

Author(s)

  • Barbara Hanratty
  • Julia Addington-Hall
  • Antony Arthur
  • Lucy Cooper
  • Gunn Grande
  • Sheila Payne
  • Jane Seymour

Department/unit(s)

Publication details

JournalBMC Family Practice
DateE-pub ahead of print - 11 Feb 2013
DatePublished (current) - 20 Feb 2013
Issue number22
Volume14
Pages (from-to)22
Early online date11/02/13
Original languageEnglish

Abstract

Increasing numbers of older patients with advanced cancer live alone but there is little research on how well health services meet their needs. The aim of this study was to compare the experiences and future preferences for care between two groups of older people with cancer in their last year of life; those who live alone, and those who live with co-resident carers.

Methods
In-depth qualitative interviews were conducted with 32 people aged between 70 and 95 years who were living with cancer. They were recruited from general practices and hospice day care, when the responsible health professional answered no to the question, of whether they would be surprised if the patient died within twelve months. Twenty participants lived alone. Interviews were recorded and transcribed and the data analysed using a Framework approach, focussing on the differences and commonalities between the two groups.

Results
Many experiences were common to all participants, but had broader consequences for people who lived alone. Five themes are presented from the data: a perception that it is a disadvantage to live alone as a patient, the importance of relational continuity with health professionals, informal appraisal of care, place of care and future plans. People who lived alone perceived emotional and practical barriers to accessing care, and many shared an anxiety that they would have to move into a care home. Participants were concerned with remaining life, and all who lived alone had made plans for death but not for dying. Uncertainty of timescales and a desire to wait until they knew that death was imminent were some of the reasons given for not planning for future care needs.

Conclusions
Older people who live alone with cancer have emotional and practical concerns that are overlooked by their professional carers. Discussion and planning for the future, along with continuity in primary care may hold the key to enhancing end-of-life care for this group of patients.

Discover related content

Find related publications, people, projects, datasets and more using interactive charts.

View graph of relations