What outcomes are important to people with long-term neurological conditions using integrated health and social care?

TY - JOUR

T1 - What outcomes are important to people with long-term neurological conditions using integrated health and social care?

AU - Spiers, Gemma Frances

AU - Aspinal, Fiona Jane

AU - Bernard, Sylvia Margaret

AU - Parker, Gillian Mary

PY - 2015

Y1 - 2015

N2 - Measuring the outcomes that are meaningful to people with long-term neurological conditions (LTNCs) using integrated health and social care services may help to assess the effectiveness of integration. Conventional outcomes tend not to be derived from service user experiences, nor are they able to demonstrate the impact of integrated working. This paper reports findings about outcomes identified as being important to people with LTNCs using integrated services. We undertook qualitative work with five community neuro-rehabilitation teams that were integrated in different ways and to different degrees. In-depth, semi-structured interviews were conducted with 35 people with LTNCs using these teams. Data were collected between 2010 and 2011 and analysed using an adapted version of the Framework approach. We identified 20 outcomes across three domains: personal comfort outcomes, social and economic participation outcomes, and autonomy outcomes. Inter-relationships between outcomes, both within and across domains, were evident. The outcomes, and the inter-relationships between them, have implications for how individuals are assessed in practice.

AB - Measuring the outcomes that are meaningful to people with long-term neurological conditions (LTNCs) using integrated health and social care services may help to assess the effectiveness of integration. Conventional outcomes tend not to be derived from service user experiences, nor are they able to demonstrate the impact of integrated working. This paper reports findings about outcomes identified as being important to people with LTNCs using integrated services. We undertook qualitative work with five community neuro-rehabilitation teams that were integrated in different ways and to different degrees. In-depth, semi-structured interviews were conducted with 35 people with LTNCs using these teams. Data were collected between 2010 and 2011 and analysed using an adapted version of the Framework approach. We identified 20 outcomes across three domains: personal comfort outcomes, social and economic participation outcomes, and autonomy outcomes. Inter-relationships between outcomes, both within and across domains, were evident. The outcomes, and the inter-relationships between them, have implications for how individuals are assessed in practice.

KW - long-term neurological conditions

KW - health services

KW - social care services

KW - integrated care

KW - outcomes

KW - service users

U2 - 10.1111/hsc.12171

DO - 10.1111/hsc.12171

M3 - Article

SN - 0966-0410

VL - 23

SP - 559

EP - 568

JO - Health and Social Care in the Community

JF - Health and Social Care in the Community

IS - 5

ER -