Working collaboratively with an online advisory group of people with learning disabilities in covid-times: carrier pigeons, cats and drones

Eppie Leishman, Deborah Jayne Quilgars, David Abbott*, Sam Clark, Becca Cooper, Andy Pollin, Stephen Hodgkins, Paul Scarrott

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review


While much attention and emphasis have been given to the role and value of advisory groups in social science research, less has been published on the experiences of those involved in such collaborative efforts. This article reflects on the experiences of academics, collaborators and self-advocacy experts who formed an advisory group for a research project focused on people with learning disabilities’ experiences of renting their own homes. Our paper describes the collaboration, how it changed because of Covid and because of changing relationships, and what worked well and what was challenging. This is in part because these more transparent accounts of working together are sometimes missing from research. We discuss issues relating to bureaucratic research systems which are largely inaccessible to people with learning disabilities and how we approached these. We also highlight the joys and benefits of the research approach that we adopted as well as the challenging and more difficult aspects.
Original languageEnglish
Article number79
Number of pages12
JournalResearch involvement and engagement
Early online date9 Sept 2023
Publication statusE-pub ahead of print - 9 Sept 2023

Bibliographical note

© The Author(s) 2023.

Cite this